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Hi Linda, I would like to offer my support to you either via telephone or email, as our situations sound somewhat similar. My mother (75, diag. 13 years ago) is in NYC and I am very involved in her care (I'm also in NYC). I would be glad to talk to you about the variations in her medications over the years, as well as give you any other assistance that I can. I don't know about a chat room for her to use, as my mother dosen't have a computer (yet). If you would like to call me, please do. My phone number is 212-645-9231. Renee Marton