Print

Print


Humor?  Read it again please; it doesn't sound like humor to me, and I love to
laugh.
---------------------
Hi janet: I love the way you are SO reluctant to
> speak
> >> your
> >> >mind. Your 2 cents worth is more like $2.00 worth. I
> >> >especially like the part about SOME doctors not
> noticing [snip]... Carole H.
> >>
> >> hi carole
> >>
> >> i can't help it
> >> when i see what i consider arrogance or ignorance
> >> affecting someone's health
> >> i see red
>[snip]...
> >> health-care-guaranteed-for-all atmosphere adds a
> certain
> >> 'spice'
> >> to my rant tendency
> >>
Charlotte

------------------------------------
With all due respect, what's good for you and indeed many others is not
necessaryily the ONLY answer for everyone.  There should not be the Sinemet
school doing battle with the delaying Sinemet school.  There is more than one way
to skin PD.  Please, may we have a less black and white discussion?

Charlotte

Brian Collins wrote:

> I am in full agreement with Janet on the subject of delaying Sinemet. It is
> one of those situations where someone happens to start a trend (with nothing
> to support it, and all the other lemmings surge into action. And 40 million
> lemmings can't be wrong, can they?
>
> In this example of ludicrous logic, I have managed to put together what I
> think is the reasoning  (or should that be unreasoning) which led  to the
> witholding of levodopa fashion:
>
> 1) It is well known that you can't achieve a satisfactory control of PD
> symptoms with Sinemet beyond about 7 or 8 years, due to the dyskinesias and
> 'motor fluctuations'. I haven't heard a decent definition of Motor
> Fluctuations, but never mind, it must be a really bad place to go.
>   (By the way, I controlled my symptoms quite acceptably for 14 years, by
> a rational and careful application of Sinemet, and have written quite a
> lot about the subject, but I doubt if any professionals have understood my
> arguments.
>
> 2) Here it comes, the giant leap for mankind: The Sinemet would behave
> much better at the 7 to 8 year point, if we avoided using it at all in the
> early days of PD. How? Why? Where is the reasoning? There is none because
> the whole proposition is ludicrous. Have they forgotten that we are dealing
> with PD here? I doubt that anyone in the world of PD has ever made the
> slightest impression on the rate of deterioration of anyone's  PD symptoms
> (Of course, there is a range of deterioration rates, but each person's
> rate is his own, and there is no changing it.
>
> That rate of deterioration has nothing to do with Sinemet:it is loss of brain
> cells which is the cause. By the way, I forgot to mention that I took Sinemet
> alone for 14 yrs, And I took Sinemet for all but the first year of PD, AND
> I still take Sinemet 800 mg/day of levodopa at 21 years since diagnosis!!
>
> Witholding Sinemet in early PD is stupid, and it doesn't work. Of course
> proving that it doesn't work is virtually impossible because you can't go
> back and try again. It has to be done by logic, and I have done that - not
> here, I've just indulged myself by letting off some steam in this e-mail,
> but you can if you wish follow my more rational writings in the following
> web site
>
>      http://james.parkinsons.org.uk/brian.htm
>
> Happy reading,
> Regards
>
> --
> Brian Collins  <[log in to unmask]>

--
Charlotte Mancuso
***************************************************
For advocacy, medical, and other PD-related material, go to:
http://www.onelist.com/subscribe/CurePD-NorCal