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Tina, Hi ! I am a 41 yr. old atypical pd'er from Ohio. One of the meds I am taking is Sinemet . I was only in my 30's when I started taking it. Here is what happened when I was on 1.5 mg. Mirapex 1. After approx. 6 weeks I went from a size 6 to size 13/14 . 2 My knees, finger, ankle joints were in severe pain. I use a three wheel walker with hand brakes. 3. I was falling asleep at the drop of a pin. even when I did go to sleep at night :) 4. My balance was worse than before Mirapex. 5. My abdomen was swollen. SOOOOO......I called and called my doctor, then stated the reasons that I had to go off Mirapex. This was a wise choice for me. As for being employed by the the institution that is third in the nation in pallidomy surgeries.... Was that measured by quantity or quality??? OOPS.... Tina, talk to the neuro. If u don't feel comfortable with the plan of treatment or the physician , talk with the doctor. In Ohio I live there are excellent PD. movement disorder physicians. Ya jst gotta find the rght 1 4 u. k? Nancy M. janet paterson wrote: > hi all > > At 21:21 1999/11/08 -0500, tina wrote: > >I am looking for any info on Mirapex side effects....The only > >side effect I can find is about falling asleep. I am having > >bad joint pain in my knees. Just started saturday, and I started > >my full dose of Mirapex friday (1.5mg)day. I am also on Amantadine > >(generic for Symmetrel). Still having tremors and balance problems, > >so far Mirapex really hasnt helped me. I already have a call > >into my doctor, waiting for return call. Just trying to get more > >info before I see the doctor. He will not put me on sinemet because > >he says I am too young. He said the longer you take it, the worse > >side effects you get down the road. He said he only gives it to > >his older patients. My symptoms are tremor in right hand, and > >head...balance problems, fallen 5 times in past 2 weeks, joint > >pain in knees, right leg dragging and freezing (which has caused > >most of falls), depression, fatigue, and trouble walking any > >distance. I am only 31 yrs old. Any info would be greatly > >appreciated. My doctor is really good, he and his team of doctors > >are third in the nation in pallidomy surgeries. I really am just > >looking for ideas or thoughts to bring up to my doctor when I go > >see him. Thanks, and sorry for being so winded. > >Tina-----Fairfield, Ohio > > tina > > sinemet was a miracle for me > i started it in 1988 when i was diagnosed > > i had 'ignored' my walking problems for so long > that my diagnosing doctor said that my symptoms were incapacitating > [i was having difficulty walking, typing and writing] > and that justified putting me on sinemet immediately > which resulted in my symptoms virtually disappearing for years > > the dopamine agonists generally are good for treating early symptoms > for a relatively short time > > good sinemet management is the key to long useability, IMHO > > 11 years later > i now have "on" and "off" times > when my symptoms are under control and when they are not, > so sinemet doseage and timing becomes a fine art > and require close attention and patience > but that's a small price to pay for the benefits > [again, in my humble opinion] > > personally > i think your doctor has an insensitive if not sadistic attitude > toward you and your symptoms > [speaks of 'soldiering on' and 'pull yourself up by your bootstraps'] > > are you still working? > why not ask him what he would do if he were in your shoes? > > if you have clinical depression > it is eminently treatable and curable and should be addressed > i know it well and it is not something to be treated lightly > > also a couple more two cents > surgery is the option of last resort for pd symptoms > > being skilled in same does not necessarily automatically > guarantee skill or sensitivity in med management > > how many young onset patients does your doctor have? > > to quote one of my heroes > the era of 'doctor as god' is over, maybe he hasn't noticed? > > janet > getting on another rant > > janet paterson > 52 now / 41 dx / 37 onset > e-mail - [log in to unmask] > web-site - http://www.geocities.com/SoHo/Village/6263/