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Sherry,

I have been taking Requip and sinemet for about a year.  Before that it was
Mirapex which didn't last long.  It didn't seem to work.  I've tried it all.
You just have to keep trying different meds.  I don't know why everybody is
so fearful of sinemet.  The stuff has been my only relief now for twelve
years when combined with other drugs.
Everybody's different.  Just keep experimenting until you find something
you're comfortable with.

Greg
47/35/35


-----Original Message-----
From: Brenda Ambuehl <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Friday, November 12, 1999 8:05 PM
Subject: Re: Help with meds/questions


>Sherry, I can only tell you of my experience...I was first prescribed 1.5
mg.
>once a day p.m. for my parkinson's.  My immediate reaction was endema
(swelling
>in my ankles).  So, he took me off it and put me on Sinemet which
>I had been avoiding.  I was already on Amantadine.  The sinemet was
miraculous,
>but am still only on 25 mg. 6 times a day.  I was taking two at a time 3
times a
>day, but kept getting nauseated.  Then when I started having problems with
>restless leg syndrome (lying down at night, my legs would tense up and
jerk, I'd
>relax them only to have it happen again and again.  Not good for trying to
>sleep!)   So, he put me on .25 mg. TAB #XC at bedtime, and that has done
the
>trick!
>
>But everyone's system works differently.  Just keep reading and asking
questions
>and keep your doc on his toes!
>
>Cheers,
>
>Brenda
>
>
>Sherry Macredes wrote:
>
>> Hi Guys,
>>
>> Well this is it, my first visit back to the neuro since diagnosis in
August.
>> I have been taking Mirapex and gradually adding more until now taking 3mg
per
>> day.  So far I haven't seen any results, just minor side effects.  On
Tuesday
>> I will see the neuro and I know already he will suggest taking off the
>> Mirapex.  I hate to give up so soon after just getting to a dose that may
>> help.  My symptoms are rigid muscles, loss of use of left hand (when I
try to
>> use it too much it shakes a lot) and dragging the left leg has just
started.
>> Of course there are the usual fatigue, insomnia etc that almost everyone
on
>> the list has mentioned.  What should I ask the neuro?  Any questions that
I
>> should ask that I'm not aware of?  What do you think about adding
something
>> to the Mirapex instead of just switching to something else, seems like
>> everyone on the list is taking multiple drugs?  I don't know how informed
my
>> neuro is about PD how can I find out?  I have HMO insurance and don't
know if
>> I can switch or just arm myself with information and keep him on his
toes.
>> Any suggestions would be helpful to a newbie...
>>
>> Thanks
>> Sherry
>