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Mary, I'm no doctor,but I do suffer from awful foot dystonia. I've never met a Dr. with PD. I suppose they're out there somewhere. Sinemet is the only thing that keeps me walking. Greg 47/35/35 -----Original Message----- From: Marty Polonsky <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Friday, November 12, 1999 9:52 PM Subject: Trunkeal dystonia >Hey List, >Please hear me out: >For the last few years, I have had tendencies to lean significantly to the >right--with my whole body--and to experience an overpowering gravitational >pull, also to the right. The pull sometimes literally pulls me to the ground, >and has caused me to fall out of chairs, and the pull and the leaning have >both led to a generalized loss of balance which, in turn, has resulted in >many falls, some of them quite nasty--eg the one that opened up a gash on my >forehead that required multiple stitches by a plastic surgeon to close, or >the recent one which broke six ribs--most painful! Anyway, two neuros whom >I respect have now suggested to me that my leaning and sense of being pulled >are instances of "trunkeal dystonia" which cam be caused by sinemet, just >like dyskinesia. The proposed remedy for this. Is to wean me off--or down to >a minimal level of-sinimet, and to replace it with klonapin. Now, after >having PD for 13+ years, subscribing to--and reading--the List, >participating actively and regularly in 4-5 support groups, and attending >every PD conference or symposium that's come along (and, living in LA, there >have been more than a few of these), I have never heard of trunkeal dystonia, >.nor of the concept that sinimet causes dystonia (in fact, this is somewhat >confusing to me, in view of the fact that the dystonia which I have had in my >shoulder for the last 2 years is relieved. by sinemet). I just want to know >if any of you have heard of any of this , or if you have any thoughts about >it. Lastly, has any of you experienced anything like this? I welcome your >input. >Marty Polonsky >.... >.. > >. > > >..... > > > >t >