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Thanks Barb, This is a great letter!!!

Murph is the PWP and never smoked (not even one cigarette!) so we can't
help you with that, sorry.

Blessings to you for keeping the list for us -- we appreciate it.  Bev
c/t


On Tue, 16 Nov 1999 22:52:21 -0500 Barbara Patterson
<[log in to unmask]> writes:
> Hi, list-folks....ummm...we seem to have had a little spurt of uproar
> again, to say the least.  I must admit that I haven't been reading
> the
> religious war as closely as I perhaps should have.  My thoughts
> about
> what I had read was along the lines of "certainly is making folks
> think &
> write their opinions".  You know, the first support group meeting I
> went
> to just a few weeks after being diagnosed scared the daylights out
> of
> me.  Those pwp's were elderly, expressionless & obviously ill.  Now,
> I
> realize that behind that facade that pd puts up between us, there
> are
> still very wise people with very strong feelings on many
> topics...people
> who are not hesitant to express their feelings very clearly...which
> makes
> this journey with pd not quite as scary.
>
> I hope that we all feel that this is a safe place to ask/answer
> questions
> and to be open and honest about ourselves without fear of harassment
> or
> embarassment.  If there is anything that makes this impossible,
> let's work
> together towards a solution.  We are battling pd...that's war enough
> and
> work enough...we don't need to battle each other even with words.
> We can
> agree to disagree but defend each other's right to express his/her
> opinions.
>
> Many members only feel comfortable as 'list-lurkers' which is a
> totally
> acceptable use of the list.  Unfortunately, there really are the
> other
> type of lurkers out there who seem to have no purpose in their lives
> other
> than to cause trouble & hurt feelings.  I don't pretend to know why
> they
> do what they do...that's up to people with much more education and
> specialized training than I have.  The best suggestion I have about
> dealing with them is to not give them the reaction they are asking
> for.
> Charlie, perhaps you can give us better advice about this.  I hope
> so.
>
> Anyway, folks....about the 'list-rules' 'list-purpose'...as I've
> said
> before, there are over 1800 of us so there are at least 1800
> opinions
> about the purpose of the list.  The list rules are about as flexible
> as
> rules can get...in fact, maybe 'list-suggestions' would be a better
> description.  The firmest one would be:  Thou shalt not interfere
> with a
> fellow listmember's right to feel safe and welcome to post to the
> list
> (and thou shalt not use the list for monetary gain).
>
> So....can we take aim again at our mutual enemy, pd?  Has everyone
> who
> possible can written to their political representatives asking
> (demanding) funding for pd research?  Does anyone have any
> suggestions
> about the effects of quitting smoking on pwp's (This is my eigth day
> without smoking...after 30 years of smoking)?
>
> Barb
>
>
>
 ========================================================================
===
> Barbara Patterson
> [log in to unmask]
> HSC 2J22                                        905-525-9140, ext.
> 22403
>                         School of Nursing
>
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===