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Hi Barbara: You always make sense. I guess that's why
you're the ListMom. Thanks for giving us a "safe place"
from which to plan the defeat of our mutual enemy,
Parkinsons. Will get back to work questioning my senior
Senator re: his waffling on PD funding.Interesting question
re: effects of smoking cessation on PWPs. Don't have any
answers, but good luck and take care.           Carole H.

--- Barbara Patterson <[log in to unmask]> wrote:
> Hi, list-folks....ummm...we seem to have had a little
> spurt of uproar
> again, to say the least.  I must admit that I haven't
> been reading the
> religious war as closely as I perhaps should have.  My
> thoughts about
> what I had read was along the lines of "certainly is
> making folks think &
> write their opinions".  You know, the first support group
> meeting I went
> to just a few weeks after being diagnosed scared the
> daylights out of
> me.  Those pwp's were elderly, expressionless & obviously
> ill.  Now, I
> realize that behind that facade that pd puts up between
> us, there are
> still very wise people with very strong feelings on many
> topics...people
> who are not hesitant to express their feelings very
> clearly...which makes
> this journey with pd not quite as scary.
>
> I hope that we all feel that this is a safe place to
> ask/answer questions
> and to be open and honest about ourselves without fear of
> harassment or
> embarassment.  If there is anything that makes this
> impossible, let's work
> together towards a solution.  We are battling pd...that's
> war enough and
> work enough...we don't need to battle each other even
> with words.  We can
> agree to disagree but defend each other's right to
> express his/her
> opinions.
>
> Many members only feel comfortable as 'list-lurkers'
> which is a totally
> acceptable use of the list.  Unfortunately, there really
> are the other
> type of lurkers out there who seem to have no purpose in
> their lives other
> than to cause trouble & hurt feelings.  I don't pretend
> to know why they
> do what they do...that's up to people with much more
> education and
> specialized training than I have.  The best suggestion I
> have about
> dealing with them is to not give them the reaction they
> are asking for.
> Charlie, perhaps you can give us better advice about
> this.  I hope so.
>
> Anyway, folks....about the 'list-rules'
> 'list-purpose'...as I've said
> before, there are over 1800 of us so there are at least
> 1800 opinions
> about the purpose of the list.  The list rules are about
> as flexible as
> rules can get...in fact, maybe 'list-suggestions' would
> be a better
> description.  The firmest one would be:  Thou shalt not
> interfere with a
> fellow listmember's right to feel safe and welcome to
> post to the list
> (and thou shalt not use the list for monetary gain).
>
> So....can we take aim again at our mutual enemy, pd?  Has
> everyone who
> possible can written to their political representatives
> asking
> (demanding) funding for pd research?  Does anyone have
> any suggestions
> about the effects of quitting smoking on pwp's (This is
> my eigth day
> without smoking...after 30 years of smoking)?
>
> Barb
>
>
>
 ===========================================================================
> Barbara Patterson
> [log in to unmask]
> HSC 2J22
> 905-525-9140, ext. 22403
>                         School of Nursing
>
 ===========================================================================
>



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