 |
 |
This is exactly (i think) what my friend ann and i are trying ot canvas for - from the other end. Surely, amongst 1 million pwps in this country ( a conservative estimate) and three caregivers, and their families, and their sisters and their cousins and their aunts, amd all rabbit's friends and relations,there must be doctors , lawyers, ex-SSI employees, contractors, plumbers, car mechanics -etc. etc.who could spearhead groups of volunteers to help other pwps when they need someone to talk out for them. Sort of specialist patient advocates . so that when a pwp is faced with a situation , there is someone on call to give moral and knowledgeable support, to stand up for the rights of the pwp, from a hearing on ssi, to a car breaking down on the highway to being faced with foreclosure.... hilary Leo Fuhr wrote: > > If I read and understood this post of Cari's, the question is "Would a > general contractor who explains services for patients or caregivers/family > of patients with Parkinson's have been helpful?" This gen'l contractor > might be a not-for-profit org volunteer or employee who could guide pwp to > the services that might help pwp cope or better function with PD. > > My answer is YES, YES, YES!!!!! But I don't know of any such contractor > and that is why I attend a support group, belong to PAN, NPF and PIENetwork > and if I could afford it would belong to some more PD orgs. etc........