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Yes , you are totally correct. THere should be someone like that hospital social worker who would coordinate all those resources. But i think i am looking at the same problem from the other end - which is providing those resources, and also saying that the sort of resources that are provided are not enough. YOu are looking at practical things like meals on wheels - a wonderful service - i am looking for someone to help someone like me, and give me the sort of advice that the collective body of this list gave me, when i applied for ssi. I am saying that there are a myriad of resources out there, and that these should be tapped and correlated so that those in need can benefit from them Ii mean, if i have to call an electrician to change a lighitbulb for me (actually that is one thing i can do m;yslef, unless i fall off the ladder) but if i had to call in an electrician to do some small job for me - he could sell me that the whole ;house needed; rewiring. It would be very useful if there were a core of folks, willing and able to help out. hilary blue Leo Fuhr wrote: > > When my mom, nearly 82, was last in hospital for a blood clot, the hospital > social services coordinator talked w/dad(85) and me about home health, > meals on wheels, in home cleaning, etc. so dad and i could plan how it > would work best for them when mom ret'd home which is not in the same city > as any of we children. This person is on staff at the hospital and said > dad or i could call her anytime for information or referrals for mom who is > not a pwp. It was certainly alot more convenient to have her as a resource > rather than looking up points of contact for the multiple services my > parents needed. She was what I'd call a general contractor for patient > services in that situation. > > jeanette fuhr > > ---------- > From: Hilary Blue <[log in to unmask]> > To: [log in to unmask] > Subject: Re: PD:FOR REAL - YOUR INPUT > Date: Tuesday, November 16, 1999 12:05 AM > > This is exactly (i think) what my friend ann and i are trying ot canvas for > - > from the other end. Surely, amongst 1 million pwps in this country ( a > conservative estimate) and three caregivers, and their families, and their > sisters and their cousins and their aunts, amd all rabbit's friends and > relations,there must be doctors , lawyers, ex-SSI employees, contractors, > plumbers, car mechanics -etc. etc.who could spearhead groups of volunteers > to > help other pwps when they need someone to talk out for them. Sort of > specialist patient advocates . so that when a pwp is faced with a situation > , > there is someone on call to give moral and knowledgeable support, to stand > up > for the rights of the pwp, from a hearing on ssi, to a car breaking down on > the highway to being faced with foreclosure.... > hilary > > Leo Fuhr wrote: > > > > If I read and understood this post of Cari's, the question is "Would a > > general contractor who explains services for patients or > caregivers/family > > of patients with Parkinson's have been helpful?" This gen'l contractor > > might be a not-for-profit org volunteer or employee who could guide pwp > to > > the services that might help pwp cope or better function with PD. > > > > My answer is YES, YES, YES!!!!! But I don't know of any such contractor > > and that is why I attend a support group, belong to PAN, NPF and > PIENetwork > > and if I could afford it would belong to some more PD orgs. > etc........