 |
 |
Hilary, Noope...didn't get your first post. A visit w/Michel & Barb would be nice if time allows...remember, our teen dgthr is coming along and has a touring agenda of her own. Also have two former MO friends who now live in DC area who i need to see, too. Isn't nec for you to accompany me to visit sen/reps....I've met both before in MO and feel comfortable seeing them and will prob take dghtr too. Just booked round trip air for the trip....DC, here we come! Jeanette::)) ---------- From: Hilary Blue <[log in to unmask]> To: [log in to unmask] Subject: Re: Info re Attendance Characteristics of PD SupportGroupParticipants and Needs Assessment Instruments Date: Wednesday, November 17, 1999 6:38 PM Jeannette, Did you get my reponse to you news of your impending visit to DC? I hhoope so. I didnt realise quite how isolated o are. MAbe we can squeeeze in a visit to Michel and Barbara at Greensprings - just down the road from me. forgot to ask if you'd like me to accompany you on visit t senator/congressman? forgive brevity - i;m almost totally off. tell me if you got 1st letter or i'll send it again. luv hilary Leo Fuhr wrote: > > I'm 49, dx 47 and attend sporadically a support group that's about 75 miles > distant. That group has no one pwp or cg who is in their 40's so I am the > youngest member. What I find encouraging about the group is the sharing of > concerns and just daily life w/PD and when I have taken political info to > the group like UDALL funding in the form of petitions or letters, most > always seem willing to communicate their support of the increased funding > for pd research but most aren't regularly in touch with their legislature > members. > > I was invited to a YoungOnset support group in the city where my mds > practices, but it meets in the early evening and I cann't drive that > far(approx 80 miles one way), sit in a meeting and drive home all in one > day/eve. I think the younger group addresses diff issues like contining > working w/pd, possibly disability retirements, etc. Since that doesn't > work for me to attend, this list is my most readily available support group > and to date I've actually met at least 4 list members in person at Pd > symposiums or meetings or when they were driving past my house on way to > vacation in Branson, MO. > > I also get support from many friends and family who altho not pwp are also > coping with their own health concerns(breast cancer, lung cancer, etc.) > There are many brave, courageous persons who are successfully living with > the challenges life has given them. > > Jeanette Fuhr 49/47/44? > > ---------- > From: Sharon Y Habing <[log in to unmask]> said in part: > Janice > When you are looking for a support group you need to find a Young Onset > Group, although they seem to be few and far between. Our group does > have a few retired people and a couple who use wheelchairs when > necessary, but we are all young at heart. Our ages range from 26-65 with > a wide range of Parkinson's.