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Marty -

Chris's answer just about covered the situation.  I wonder, specifically, if
the severe "off periods" represent a change in your condition, or it the
results have always been the same.

I'm asking because we've found that there are seemingly outside influences
that can alter or reprogram Dick's stimulators.  We'd heard that high power
electrical lines can do it, or airport security devices, etc.  For a period
of time, Dick's stimulator(s) would frequently turn off.  Sometimes just one
of them, sometimes both.

 That ceased to be a problem, and then we discovered the problem of having
the stimulator settings reset by *something* he was exposed to.  Our best
guess was the scanning device customers have to walk through at a local
book/CD/video store.

In pallidal stimulation, which is what Dick had, there are five variable
settings that are programmed into the stimulator.  I imagine STN is similar.
At one point, his symptoms suddenly worsened dramatically, but we knew the
stimulator was on.  When he was checked at the doctor's office, it turned out
one of the settings had changed from 80 units to 30.

Anyway, I don't know whether you're positive your stimulator is working as
programmed, and is definitely "on" when you think it's on.  Only the medical
people with the right device can tell if it's working as programmed, but you
can verify whether your stimulator is "on" when you think it's on by holding
a cheap transistor radio up to it/them.  The static is much louder when the
device is on.

That's just our experience, for what it's worth.

Margie Swindler


<<
 1. Is the stimulation working i.e. are the stimulators switched on?
 2. Was there  a recent parameter adjustment?
 3. Have you ever had prolonged periods without severe off times?
 4. What are the stimulation parameters at this moment.  Were they ever
 changed?
 5. Were the electrodes placed in the STN?
  >>