Thought you'ld like to know---
The House passed the committee report for L/HHS, and according to Jim
Lehrer News Hour, Clinton approved it from Turkey. Presumably this
means he'll sign it when he returns, the following language is still in
it, and the increase in NIH spending is $2.3 Billion.
Charlotte
(excerpted from M. Claeys' message from PAN)
1999 has been a very successful year for the
Parkinson’s advocacy movement.
Parkinson’s advocates everywhere need to know that
all of the legislative
accomplishments are built on the foundation of
grassroots advocacy. ...
Everyone who contributed to the cause - from writing
a single letter or post
card, to meeting repeatedly with a legislator or
staff person, to offering
financial support - should take pride in this year’s
successes. The Network
thanks you for all your hard work, ...
FY2000 Labor/HHS Appropriations Bill
As one direct result of this year’s intense
multi-faceted advocacy effort,
the fiscal year 2000 Labor, Health & Human Services
and Education
(Labor/HHS) Appropriations conference report
contains the following
language:
“NIH is expected to consult closely with the
research community, clinicians,
patient advocates, and the Congress regarding
Parkinson’s research and
fulfillment of the goals of the Morris K. Udall
Parkinson’s Research Act.
NIH is requested to develop a report to Congress by
March 1, 2000 outlining
a research agenda for Parkinson’s focused research
for the next five years,
along with professional judgment funding
projections. The NIH Director
should be prepared to discuss Parkinson’s focused
research planning and
implementation for fiscal year 2000 and fiscal year
2001.”
For the first time ever, Congress is asking the NIH
to develop a research
agenda - with cost projections - aimed at finding a
cure for Parkinson’s
disease. This dramatic new request, and the March
1st deadline, has created
a sense of urgency at the NIH, in Congress and
throughout the Parkinson’s
community.
--
Charlotte A. Mancuso
***************************************************
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