Print

Print


Hilary Blue wrote:
>
> Tina,
> i know that each case must be judged individually but i h ave been taking
> sinemet since i was 32, and i'm 50 now. Sure i have a bit of a problem with
> dyskinesia - but amantadine takes care of most of that - and for the rest,
> hardly anybody believes me the first time i tell them i've had this disease
> for nearly 27 years ! I am still walking on my own two feet, never use a cane
> or a walker, and still going up and down the stairs in my house in order to
> foist off mild dystonia.  Finally, the last few months , things are slowing
> down a bit , but i/ve had  one helluvan innings (pardon my language). When it
> was first suspected that i had PD., about 2 years before the definite
> diagnosis (1981 or so)  the neurologist said he could hold out no promise for
> me beyond 15 years
> Well I went back to Israel last year, and tried to look him up to show him i
> was still. around -
> but he wasn't there any longer!
>
> hilary
>
> Tina wrote:
> >
> > because he said I am too young.  I am 31yrs old, and he said there are
> > serious side effects down the road and did not want to put me on it.
> >