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--- janet paterson <[log in to unmask]> wrote: > Date: Thu, 25 Nov 1999 14:04:51 -0500 > To: steve whysall <[log in to unmask]> > From: janet paterson <[log in to unmask]> > Subject: Re: FWD: Confusion/Ivan [from Camilla Flintermann] > > hi steve > > please forward this to the list per camilla's request > thanks > > janet > > -------------------------------------- > >Date: Thu, 25 Nov 1999 13:03:07 -0500 > >From: Camilla Flintermann <[log in to unmask]> > >Subject: Re: FWD: Confusion/Ivan [from Camilla Flintermann] > > > >Dear Ivan--- my impression of your financial source was based on the > >experience a year or 2 ago when there was some discussion on PIEN of > >sending funds to help you pay for better-qualified CGs, because you had > >such trouble getting good dependable ones. At that time it was my > >understanding that you said you could not be sent money--that it would have > >to go into an account that would be set up just for that purpose, and pay > >aides directly--you could not receive it without jeopardizing your income. > >If I misspoke in referring to it as "assistance", I regret that--I had no > >intention of embarrassing you. > > > >>> > >>>I am not on "public assistance." I receive social security > >>>due to disability (SSDI). Public assistance somehow > >>>sounds like doled out , rather than returned to you > >>>in your later years after you had it taken out of your paychecks. > >>> > >>>People who are retired on social security can surely > >>>receive unsolicited gifts. Doesn't Camilla overstate > >>>her case? I'm kind of shocked at her attitude. > > > >(see my explanation above--do you recall that time? ) > > > >>>Also, I think it must be made clearer that I have not > >>>solicited money. Someone I never heard of (PaulLauer?) > >>>started the idea- I really don't like the unstated > >>>suggestion that people are giving to me, at my urging, and > >>>moreover, against reasonable moral grounds, and also, > >>>Barbara Patterson's will. It's a guilt trip, the way > >>>I read it! > > > >I must repeat the fact that I am not on the list--I am supposed to be > >packing for our move in a few weeks! Janet fwd posts to me that she > >thought pertinent, starting I think with Paul's, and I replied, trying to > >make it clear that I had NOT seen the entire discussion. I don't think I > >ever said that you had "solicited funds", as it was clear the idea came > >from Paul. But I recall a comment about "pledges to Janet" and your > >comment to the effect that it was "not yet" appropriate, or words to that > >effect. From that it seemed that you implied it might be appropriate later > >on, and that disturbed me. I think others got the same impression, as > >there were other fwd posts about transfer of funds to US from Canada, etc. > >Nor do I think Barbara Patterson was particularly chastising you--just > >responding to the traffic on the list with a caution as follows: > > > >Barb wrote in part: > >All in all, I think it best to keep money matters > >>(other than urging (nagging?) for research dollars) completely off the > list. > >>Of course, if you wish to contribute...perhaps privately...off the > >>list..would be better. > >> > >> Please make any phone calls, write letters in support of Ivan...but > >>please don't involve the list in any donations of money. > >> > >>Barb > > > >Are you now saying that gifts to you from individuals would NOT in any way > >affect your eligibility for the home care services you receive? I > >understood these were a "benefit" and not paid for by you from your SSDI? > >I recall that on occasion you paid an aide a little extra out-of-pocket, to > >add to the very meager amount they receive from the agency that pays them. > >Please correct me if this is wrong. > >This confusion is further evidence of the difficulty of explaining your > >very complex situation. At different times you have written about different > >aspects of it, and I was very glad when you told me in your phone call that > >you would get in touch with the PWP who has advised and helped in the > >past. He may not be the whole solution now, but he seems like a logical > >place to start. > > > >I do not intend to return to PIEN for several weeks and would prefer that > >mail be sent to me offlist, rather than continue to impose on Janet's good > >nature with all the fwdg--I had no idea there would be so much. I second > >Barbara's suggestion that this matter be taken off the list, and those who > >wish to write or call feel free to do so, as Ivan has suggested. > > > >Camilla Flintermann, CG for Peter 81/70/55 > >Oxford, Ohio > >http://www.newcountry.nu/pd/members/camilla/one.htm > ><[log in to unmask]> > > > > "Ask me about the CARE list for > > Caregivers of Parkinsonians ! " > > ____________________________________________________________ Do You Yahoo!? Get your free @yahoo.co.uk address at http://mail.yahoo.co.uk or your free @yahoo.ie address at http://mail.yahoo.ie