 |
 |
Hi Nancy, My wife Aliza has been dx as StriatoNigral Degeneration(SND)MSA. She does not do well with ordinary Sinemet and also suffers from dystonia of her right big toe.She does better with Sinemet CR 200/50 every four hours. What is the levadopa/carbidopa concentration per ml of the liquid sinemet that you take?Aliza also has poor balance and weakness and can't walk by herself. Gil,CG for Aliza ----------- Date: Sun, 5 Dec 1999 17:08:30 -0500 From: B & N Nothnagel <[log in to unmask]> Subject: dystonia i have dystonia on my right side from my neck to my toes. especially bad in my arm and wrist. my neuro said she thought it might be caused by the sinemet. i tried an experiment and did not take my sinemet for a few hours and went to physical therapy. my theripist said my body was much more relaxed and i had no pain. then i took my sinemet and when it kicked in so did the dystonia. my neuro is slowly taking me off the sinemet and i am finding that my balance and strength are going also. i think the balance and strength i get from the sinemet is going to be necessary so i will have to suffer with the dystonia. i should also mention that i have msa (multiple system atrophy) and use a wheelchair most of the time and when i walk i have to hold on to someone's arm. i was on 35 ml liquid sinemet and now i am on 15 ml each hour and my dystonia is much better but my balance and strength are not good. i wonder what it will be like when i am off it all together. nancy