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Hi Barbara: A most excellent welcoming message.   Carole

--- Barbara Patterson <[log in to unmask]> wrote:
> I have been very remiss in welcoming new members to our
> list so have
> decided to post the welcoming message to the entire list
> this time.  This
> message includes the basic 'how-to' information in
> communicating with the
> listserver.  One thing I would like to draw your
> attention to is that
> listserver is not set up to handle anything but plain
> text messages.
> Please check that your email program is set for plain
> text not html and
> that your email is not being sent as an attachment.
> Thanks, Barb
>
>  Welcome!
>
> You have joined the PARKINSN mailing list, also known as
> the Parkinson's
>  Information Exchange Network (PIEnet).
>
>  Please send a message to the list members (if you want
> to) introducing
> yourself and any Parkinson's-related topics you would
> like.
>
> Let me introduce myself. I am a secretary for four
> faculty members in the
> School of Nursing, McMaster University.  In September,
> 1992, I was
> diagnosed as having Parkinson's ... hence my interest in
> this list.
>
> My purpose in starting the list was the exchange of
> information about
> Parkinson's. The list rapidly changed into the largest
> support group I
> know.  Besides its original purpose, the list has become
> 'a means of feeling
> connected' to other members... a way of feeling we're not
> alone... of
> making the road of living with pd easier to bear.
>
> I have always felt that we hear each other better on the
> list because we
> can't  see each other.  Symptoms, age, colour, race,
> don't interfere.
> The list
> knows no countries, has nothing to do with money...
> there's no "what's in
> it for
> me?"
>
> But these same qualities mean our words are open to
> misinterpretation.
> Since others can't see our wry smile or wink or hear our
> tone of voice, a
> goal
> of  keeping it "short & sweet" can result in appearing
> abrupt.
>
> Also, the same word can have different meanings and
> different shades of
> meaning to different people in different areas of the
> world so care must
> be taken in both your writing and your reading of the
> messages.
>
> Flaming and selling are not allowed.  Please send
> messages in plain text
> only.
> Do not make any changes in medication or any treatments
> without
> consulting
> your physician.  Be kind.  Be honest.  Share the time
> fairly.... if you
> think you have
> taken more than your share of the list resources, you
> just might have.
>
> Keep it generally related to Parkinson's. Don't abuse the
> generosity of
> the University of Toronto's free gift of the list. Don't
> include all of the
> message to which you are replying. Use plain text with no
> attachments.
> Wash your hands with soap before you eat. :) In other
> words, use the same
> common courtesy that you would elsewhere.
>
> We need everyone's voices if we are going to make a
> difference in the care
> and treatment of pd and the motivation and funding of
> research. Speak up.
> Tell your story. Ask your questions. Answer questions.
> Debate/argue about
> the answers. Debate/argue about the goals,
> administration, day-to-day
> functioning of the list. Tell a joke... but please don't
> attempt to
> silence anyone else's voice.
>
> The messages on the Parkinsn list may be personal but
> they are NOT
> private... never have been. The illusion of privacy when
> using e-mail is
> just that:
> an illusion.
>
> Never, in the history of this planet, has this kind of
> relationship
> existed. We meet in a place that has no walls. We talk to
> our friends whom
> we have never seen. We care deeply for other members whom
> we will never
> physically hug. Folks, we're making it up as we go along,
> so any rules
> have to be flexible.
>
>  I hope you enjoy your involvement with the Parkinsn
> Information Exchange
> Network.
>
>  Barb
> =======================================================
> Barbara Patterson
> [log in to unmask]
> HSC 2J22                        905-525-9140, ext. 22403
> Secretary                       School of Nursing
> McMaster University             Hamilton, Ontario, Canada
> =======================================================
>
>  Parkinsn Subscription Instructions: The Short Version:
>
>  List Address: for posting a message to the PARKINSN
> listmembers:
>       [log in to unmask]
>
>  Command Address: for sending a command to the LISTSERV
> computer:
>       [log in to unmask]
>
>  To obtain a list of the commands that the listserv
> recognizes:
>       HELP
>  To obtain your current subscription options:
>       QUERY PARKINSN
>  To receive copies of your own messages:
>       SET PARKINSN REPRO
>  To change from individual messages to the digest format:
>       SET PARKINSN DIGEST
>  To change back to individual messages from the digest
> format:
>       SET PARKINSN NODIGEST
>  To stop incoming mail temporarily:
>       SET PARKINSN NOMAIL
>  To resume incoming mail:
>       SET PARKINSN MAIL
>  To stop incoming mail permanently and terminate your
> subscription:
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>       SUBSCRIBE PARKINSN YOURFIRSTNAME YOURLASTNAME
>
>  more detailed instructions are on the World Wide Web at:
>  <http://www.geocities.com/SoHo/Village/6263/pienet/subs/
>
>
 ===========================================================================
> Barbara Patterson
> [log in to unmask]
> HSC 2J22
> 905-525-9140, ext. 22403
>                         School of Nursing
>
 ===========================================================================
>

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