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SET PARKINSN DIGEST ----- Original Message ----- From: Barbara Patterson <[log in to unmask]> To: <[log in to unmask]> Sent: 01 December 1999 12:24 Subject: Welcoming New Members > I have been very remiss in welcoming new members to our list so have > decided to post the welcoming message to the entire list this time. This > message includes the basic 'how-to' information in communicating with the > listserver. One thing I would like to draw your attention to is that > listserver is not set up to handle anything but plain text messages. > Please check that your email program is set for plain text not html and > that your email is not being sent as an attachment. Thanks, Barb > > Welcome! > > You have joined the PARKINSN mailing list, also known as the Parkinson's > Information Exchange Network (PIEnet). > > Please send a message to the list members (if you want to) introducing > yourself and any Parkinson's-related topics you would like. > > Let me introduce myself. I am a secretary for four faculty members in the > School of Nursing, McMaster University. In September, 1992, I was > diagnosed as having Parkinson's ... hence my interest in this list. > > My purpose in starting the list was the exchange of information about > Parkinson's. The list rapidly changed into the largest support group I > know. Besides its original purpose, the list has become 'a means of feeling > connected' to other members... a way of feeling we're not alone... of > making the road of living with pd easier to bear. > > I have always felt that we hear each other better on the list because we > can't see each other. Symptoms, age, colour, race, don't interfere. > The list > knows no countries, has nothing to do with money... there's no "what's in > it for > me?" > > But these same qualities mean our words are open to misinterpretation. > Since others can't see our wry smile or wink or hear our tone of voice, a > goal > of keeping it "short & sweet" can result in appearing abrupt. > > Also, the same word can have different meanings and different shades of > meaning to different people in different areas of the world so care must > be taken in both your writing and your reading of the messages. > > Flaming and selling are not allowed. Please send messages in plain text > only. > Do not make any changes in medication or any treatments without > consulting > your physician. Be kind. Be honest. Share the time fairly.... if you > think you have > taken more than your share of the list resources, you just might have. > > Keep it generally related to Parkinson's. Don't abuse the generosity of > the University of Toronto's free gift of the list. Don't include all of the > message to which you are replying. Use plain text with no attachments. > Wash your hands with soap before you eat. :) In other words, use the same > common courtesy that you would elsewhere. > > We need everyone's voices if we are going to make a difference in the care > and treatment of pd and the motivation and funding of research. Speak up. > Tell your story. Ask your questions. Answer questions. Debate/argue about > the answers. Debate/argue about the goals, administration, day-to-day > functioning of the list. Tell a joke... but please don't attempt to > silence anyone else's voice. > > The messages on the Parkinsn list may be personal but they are NOT > private... never have been. The illusion of privacy when using e-mail is > just that: > an illusion. > > Never, in the history of this planet, has this kind of relationship > existed. We meet in a place that has no walls. We talk to our friends whom > we have never seen. We care deeply for other members whom we will never > physically hug. Folks, we're making it up as we go along, so any rules > have to be flexible. > > I hope you enjoy your involvement with the Parkinsn Information Exchange > Network. > > Barb > ======================================================= > Barbara Patterson [log in to unmask] > HSC 2J22 905-525-9140, ext. 22403 > Secretary School of Nursing > McMaster University Hamilton, Ontario, Canada > ======================================================= > > Parkinsn Subscription Instructions: The Short Version: > > List Address: for posting a message to the PARKINSN listmembers: > [log in to unmask] > > Command Address: for sending a command to the LISTSERV computer: > [log in to unmask] > > To obtain a list of the commands that the listserv recognizes: > HELP > To obtain your current subscription options: > QUERY PARKINSN > To receive copies of your own messages: > SET PARKINSN REPRO > To change from individual messages to the digest format: > SET PARKINSN DIGEST > To change back to individual messages from the digest format: > SET PARKINSN NODIGEST > To stop incoming mail temporarily: > SET PARKINSN NOMAIL > To resume incoming mail: > SET PARKINSN MAIL > To stop incoming mail permanently and terminate your subscription: > SIGNOFF PARKINSN > To subscribe, send this command: > SUBSCRIBE PARKINSN YOURFIRSTNAME YOURLASTNAME > > more detailed instructions are on the World Wide Web at: > <http://www.geocities.com/SoHo/Village/6263/pienet/subs/ > > =========================================================================== > Barbara Patterson [log in to unmask] > HSC 2J22 905-525-9140, ext. 22403 > School of Nursing > =========================================================================== >