----Oorspronkelijk bericht-----
Van: Don & Karen Berns <[log in to unmask]>
Aan: [log in to unmask] <[log in to unmask]>
Datum: woensdag 8 december 1999 6:23
Onderwerp: Don Berns 6 year Pallidotomy Report(Part 1)
6 YEAR POST-Pallidotomy REPORT
(Surgery date 12/1/93)
By Dr. Don Berns
United Parkinson's Disease Rating Scale (UPDRS)
On ; Off
Prior to Surgery : 12/1/93 : -46 ; -51
Six Years Post-surgery : 12/1/99 : -04 ; -12
It is truly hard to believe that it has been six years since I was rolled
into the O.R. for my pallidotomy. How different my life would be today had I
not had the surgery. How barren my life would be had I not driven down to
San Diego that Saturday four months before to hear Dr. Bob Iacono speak
about how the pallidotomy was so much more effective than fetal cell
implants.
When I reflect on all that I have been able to do as the result of this
operation I am overwhelmed and oh, so grateful. For those of you who are not
familiar with my story. Let me say that I had a adrenal graft implant at
Vanderbilt in 1987 with minimal benefits. On December 1, 1993 I had a
simultaneous bi-lateral pallidotomy. This life changing transformation was
performed by Dr. Bob Iacono, after others had told me I would not be a good
candidate since my brain was already compromised by the surgery at
Vanderbilt. As has been my commitment to the larger Parkinson's community I
have posted updates on my condition every year since surgery. As I head into
my seventh year post-surgery I continue to benefit greatly from the
pallidotomy.
COLUMN CODES
-1 = SYMPTOM BEFORE SURGERY
0 = 6 mos. AFTER SURGERY
1 = 1 YR. POST-OPT
2 = 2 YR. POST-OPT
3 = 3 YR. POST-OPT
4 = 4 YR. POST-OPT
5 = 5 YR. POST-OPT
6 = 6 YR. POST-OPT
SYMPTOMS BEFORE SURGERY & YEARS POST SURGERY
SYMPTOM___ -1______0_____1_____2_____3_____4______5_____6__
____________________________________________________________
Tremor_____Severe__Gone__Gone__Gone__Gone__Gone__Gone__Gone
Dyskinesia__Severe__Gone__Gone__Gone__Gone__Gone__Gone__Gone
Sweating____A Lot___Gone__Gone__Gone__Gone__Gone__Gone__Gone
/Sleep______Severe__Gone__Gone__Gone__Gone__Gone__Gone__Slight
\Disturb
/Eyelids
|Open While___Yes__Closed_Closed_Closed_Closed_Closed_Closed_Closed
\Sleeping
Shuffle_______Yes____Gone__Gone__Gone__Gone__Gone__Rare___Rare
GaitFreeze____Yes___Gone__Gone__Gone__Gone__Gone__Gone___Rare
SenseSmell__Gone___Better__Better_Better__Better__Better_Better__Better
MuscleAche___Yes___Gone__Gone__Gone__Gone__Gone__Gone___Gone
BackProblm__Yes____Gone__Gone__Gone__Gone__Gone__Gone___Gone
Akinesia_____Yes____Gone__Gone__Gone__Gone__Gone__Gone___Gone
Brady-kinesia_Yes____Gone__Gone__Gone__Gone__Gone__Gone___Gone
SexPerfmce__Poor___Great__Great__Great__Great__Great__Great___Great
Stress______Affect__NoEffct_NoEffct_NoEffct_NoEfct_NoEfct_NoEfct_NoEffct
Drooling_____Rare___Slight__Slight__Slight__Slight__Slight__Slight___Slight
/Urgency_____Yes____No_____No___Slight__Slight__Slight__Slight___Slight
\Urinate
Dystonia_____None___None__None__None___None__None__None___None
/Shortness____Yes____None__None__None___None__None__None___None
\ofBreath
Voice_______Weak__Better__Better__Varies_Varies_Varies_Varies__Varies
Speech____Affected__Better__Better__Better_Better_Varies _Varies__Varies
Handwritng___Bad___Normal_Normal_Normal_Normal__Affect__Affect__Affect
On-Off______Yes____Gone__Gone___Gone__Gone___Gone__Gone___Gone
Appetite____Poor___Normal_Normal_Normal_Normal__Normal_Normal_Normal
Weight_____Loss____Loss___Gain__Normal_Normal__Normal_Normal_Normal
/Senseof___Poor____Exclnt__Exclnt__Exclnt__Exclnt___Exclnt__Exclnt__Exclnt
\WellBeing
Don Berns Karen W. Berns
B.S.M.E., clay pot, Assoc. Pastor
M. Div.,Wounded Healer, Pleasant Hills Community
P.D., D. Min. Presbyterian Church
Parish Associate 199 Old Clairton Rd.
Pittsburgh, PA 15236
Website for Don Berns pallidotomy story
http://www.geocities.com/SoHo/Village/6263/pienet/hithgang/hitdonb1.html
Karen & Don Berns
110 Delano Dr.
Pittsburgh, PA 15236
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