Dear Michel: Perhaps the neuro's office SHOULD BE a
library, or at least a gateway that points you in the right
direction towards accessing resources like the national
Parkinson's organizations, and this List. When faced with
the davastating diagnosis of an incurable, chronic,
degenerative neurological disease, it would be helpful to
learn about the wonderful available support and education
that many patients and caregivers don't know is out there.
This was reinforced for me when I volunteered for the
N.Y.C. Parkinson's Walk and sat at an information booth on
a N.Y.C. streetcorner giving directions to the Walk. So
many people asking for brochures, etc. So many people
starved for information about this disease. I am a
health-care professional, so I know where to look. What
about the others?
Fondly, Carole
--- Michel Margosis <[log in to unmask]> wrote:
> Carole Hercun wrote:
>
> > Hi Paul: I am amazed at the paucity of information
> > available in the average neuro's office, even in the
> > medical centers like Johns Hopkins and St.Elizabeth's.
> The
> > wonderful resource that is this List was only
> discovered by
> > me (and I'm sure by others)by accident. So please don't
> > shut up. Suggestions, anyone?
>
> The neuro's office is not a library, meaning that it's no
> place to get
> information unless it comes directly from the neuro
> himself. The
> neuro's office is for treatment!
> Public libraries, organizations like the NPF (National
> Parkinson
> Foundation), APDA (American Parkinson Disease
> Association), etc. can
> give you mounts of information about the disease and
> various support
> groups.
> This list is but a tiny fraction of the PWP population
> and it is fraught
> with misinformation as well as correct information, and
> it is often
> difficult for an untrained person to differentiate.
> Thus, do not accept
> anything stated here unless properly verified or
> corroborated because
> the wrong information may be hazardous to your health.
> Michel Margosis
> 'Carpe Diem'
>
__________________________________________________
Do You Yahoo!?
Thousands of Stores. Millions of Products. All in one place.
Yahoo! Shopping: http://shopping.yahoo.com
