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susan, i kept your letter until now, things have been rather busy in my
life. I misssed how long your husband had been diagnosed, but i am assuming
its fairly new, and you both are going to have some big adjustments. I wish
i had some profound words of wisdom to offer you, but i really don't. This
list can offer a lot of help, and a little aggrivation, so stay with it.
Some of the best advice I have gotten off of it - you can cry in the shower,
and no one can see the tears. Laugh as much as possible, and spend time
doing things you enjoy. Take care of yourself, it's easy to get so wrapped
up in your role as care giver that you ignore your own pain, and that will
eventually catch up to you. There is a good book out, "Living with a
chronically ill spouse" that you might look for. It covers pretty well
everything, her husband was dying of ms, not pd, but it hit close to home in
my house.  Finally, always try to find faith, it will help when nothing else
does.
For your info, i was diagnosed with pd, and then with ms ( it's not pd)a
year later. my wife and i were in a bad car wreck in early oct, she is just
now out of icu, and still may not make it. so i have gotten a good dose of
both sides of the care giver issue. in my opinion, being sick is the easy
side, you at least can tell yourself, well she will be ok if....
hope this helps
bob aka tex
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