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Paul.....great idea......go for it......originally when diagnosed I called three hospitals in my area (at my neuro's suggestion) looking for support groups and all they could give me was their once a month mtg which didn't have too much to offer.....people just weren't friendly, just speakers and no group interaction..I felt so alone with this....and I seemed to need the support in the middle of the night when I couldn't sleep....and I was getting really scared .by all I was reading that could/would happen to me........I was still in the "who me?" "why me" denial stages and feeling so alone...then one sleepless night I stumbled on the dumpster gang site and somehow found out about this LIST.......and all of a sudden there were 1,800+ people out there just like me with PD ....it helped me overcome that feeling of being all alone with PD.....it got me to the point where I could actually say the words "I have PD" outloud where I couldn't before.....I told my neuro about the list and said had heard about this List but never told me about it........and yet it helped me so much......pls do what you can........if we come up with a flyer, I'll be sure to give it to my neuro and the 3 hospitals...... Joan Hartman ----- Original Message ----- From: Paul Lauer <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, December 15, 1999 7:15 PM Subject: Just an idea > Dear list: Over the weekend, I bumped into an acquaintance who I hadn't seen > in 3 or 4 years who had developed PD, as I had, in the intervening period. > After a short while, it was painfully obvious how little he knew about the > disease even though he was in his third year with it. As it happens, he and > his wife are not computerized, so my intended suggestion to get on the list > would have gone nowhere. But I began to think about all the other pwp who are > not on the list and wonder what their extent of knowledge was. Aside from > what I learn on the list directly, the references which pop up from time to > time about other sources of info are invaluable and leads one to the sites > fro information gathering. For example, I recently added 'Ask Dr. Lieberman' > to my list membership and receive as much mail from that source as from the > pienet. Anyway, I digress. I was wondering if there would be any sense in > trying to mount an informational campaign, centered say on Neuro's offices, > in an attempt to make more pwp aware of the list. Perhaps someone with PR > skills could compose a flyer which we could download (for uniformity) and > then with Neuro permission, leave a batch of them in waiting rooms or on > bulletin boards for patients to pick up. Any merit? Any other ideas? Or > should I shut up. > > Paul H. Lauer >