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I have to agree with Carol, I found this LIST by accident also. Best accident I've had in a while. These doctors should have, at the very least, a source list of addresses (both snail and e-mail), phone numbers, etc. that he/she can give to newly diagnosed patients as a starting point for information. AND PIENET SHOULD have a prominent place on that reference list. maybe a general source list for pwp's is the approach to take. any thoughts? Apart from hard core information, this list provides a support that is invaluable from a whole person perspective For people like me whose mobility is limited, it is a god-send. (include SPARKLE in that too!) I don't know how many times in the last few months when just reading some of the postings has given me a smile or warmed my heart or made me think beyond my little world to share in the world of others. I want to share this list with as many in need as i can reach. Even with the petty bickering that goes on at times.. Let's face it, a fair number of us are diagnosed by a general neuro. Parkinson's is only one of many diseases they deal with. Actually same can be said of a movement disorder specialist. Personally, I don't take anything I read from any source as written in stone. (I constantly engage my own filters, for better or worse )And I would be a little suspicious of any doctor who wasn't open to a source like this one. But as "they" say, "to each his own. It never hurts to ask. fondly, Cathy (50, 48,,46) Michel Margosis wrote: > Carole Hercun wrote: > > > Hi Paul: I am amazed at the paucity of information > > available in the average neuro's office, even in the > > medical centers like Johns Hopkins and St.Elizabeth's. The > > wonderful resource that is this List was only discovered by > > me (and I'm sure by others)by accident. So please don't > > shut up. Suggestions, anyone? > > The neuro's office is not a library, meaning that it's no place to get > information unless it comes directly from the neuro himself. The > neuro's office is for treatment! > Public libraries, organizations like the NPF (National Parkinson > Foundation), APDA (American Parkinson Disease Association), etc. can > give you mounts of information about the disease and various support > groups. > This list is but a tiny fraction of the PWP population and it is fraught > with misinformation as well as correct information, and it is often > difficult for an untrained person to differentiate. Thus, do not accept > anything stated here unless properly verified or corroborated because > the wrong information may be hazardous to your health. > Michel Margosis > 'Carpe Diem'