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Suzie -- just wanted to respond to your post below. My husband, Murph, went to the neuro only 1X by himself and that was at the time of his diagnosis. I felt terrible that I hadn't been with him, and ever since that time, we have always gone together. He really appreciates having me there and the neuro will often ask me for input since Murph doesn't notice everything he is doing. Example -- he started having dyskenesia while on Sinemet and I mentioned it to the Dr. -- Murph hadn't noticed he was doing anything differently. If at all possible, I would encourage you to go with him from now on. Bev c/t On Fri, 17 Dec 1999 23:27:37 -0600 Susan Schmidt <[log in to unmask]> writes: > Jeannette, Dick is seeing a neurologist that his heart doctor > reccommended. He ssems to be competent enough, but not one to get > overly > involved with his patients. I have only talked to him once. Dick > usually goes to his doctors by himself. He goes when he is suppose > to > and is not afraid to call and ask questions and he will do what the > doctors tell him, (most of the time) He takes his medication but > sometimes not as he should. He has short term memory loss from his > heart attacks. It is quite a balancing act between keeping the PD > meds > coordinated with the heart meds. He has only been on Sinement about > a > year, but in that time, it has been increased three times. But in > spite > of all this, he still get up at 5am an goes to work and does not > stop > until 6pm or later. > His idea has always been that no matter what you just get up every > morning and do what you have to do to the best of your ability and > the > rest will take care of itself. I think I get more out of this list > than he does. He does not seem to interested in what I am > learning. > At first, I wanted him to take a disability from the company and > stay > home and take it easy and enjoy his life while he can, but, now I > am > not so sure. Maybe he is doing what is best for him. We all cope > in > our own way. I just want him to have the best of whatever is > available > to him at any given time. My concern is that everytime he has a > problem > like twitching all night, losing is speech in the middle of the day, > (he > is a saleman and that can be very disconcerting to customers as > they > sometimes think he is drunk because his speech gets very thick and > slurred.) his doctor just gives him another pill. It seems I spend > all > my time ordering medication. Some of it helps and some doesn't. It > also > seems to me that since the onset of his symptoms (he was unable to > control his saliva) that he has developed other symptoms at a very > rapid > pace, but his doctor seems to think > this is normal and just increases his medicine. I guess I just want > to > know if this is how it goes. I feel we are ignorantly just doing > what > we are told to do and hoping that we are doing the right thing.. > Suecg