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Sue Hi:) I have Atypical Parkinson's disease and 41 years old. Don't wait until ur spouse 'needs' u to accompany him to the doctors appointments please. I understand some Parkies may say I will be fine , I can go myself, ect., however, go with him sometimes. Maybe go to lunch beforehand or after for coffee? Sincerely, Nancy M. -----Original Message----- From: Merlin H Brown <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Saturday, December 18, 1999 9:38 AM Subject: Re: The List >Suzie -- just wanted to respond to your post below. My husband, Murph, >went to the neuro only 1X by himself and that was at the time of his >diagnosis. I felt terrible that I hadn't been with him, and ever since >that time, we have always gone together. He really appreciates having me >there and the neuro will often ask me for input since Murph doesn't >notice everything he is doing. Example -- he started having dyskenesia >while on Sinemet and I mentioned it to the Dr. -- Murph hadn't noticed >he was doing anything differently. If at all possible, I would encourage >you to go with him from now on. Bev c/t > >On Fri, 17 Dec 1999 23:27:37 -0600 Susan Schmidt ><[log in to unmask]> writes: >> Jeannette, Dick is seeing a neurologist that his heart doctor >> reccommended. He ssems to be competent enough, but not one to get >> overly >> involved with his patients. I have only talked to him once. Dick >> usually goes to his doctors by himself. He goes when he is suppose >> to >> and is not afraid to call and ask questions and he will do what the >> doctors tell him, (most of the time) He takes his medication but >> sometimes not as he should. He has short term memory loss from his >> heart attacks. It is quite a balancing act between keeping the PD >> meds >> coordinated with the heart meds. He has only been on Sinement about >> a >> year, but in that time, it has been increased three times. But in >> spite >> of all this, he still get up at 5am an goes to work and does not >> stop >> until 6pm or later. >> His idea has always been that no matter what you just get up every >> morning and do what you have to do to the best of your ability and >> the >> rest will take care of itself. I think I get more out of this list >> than he does. He does not seem to interested in what I am >> learning. >> At first, I wanted him to take a disability from the company and >> stay >> home and take it easy and enjoy his life while he can, but, now I >> am >> not so sure. Maybe he is doing what is best for him. We all cope >> in >> our own way. I just want him to have the best of whatever is >> available >> to him at any given time. My concern is that everytime he has a >> problem >> like twitching all night, losing is speech in the middle of the day, >> (he >> is a saleman and that can be very disconcerting to customers as >> they >> sometimes think he is drunk because his speech gets very thick and >> slurred.) his doctor just gives him another pill. It seems I spend >> all >> my time ordering medication. Some of it helps and some doesn't. It >> also >> seems to me that since the onset of his symptoms (he was unable to >> control his saliva) that he has developed other symptoms at a very >> rapid >> pace, but his doctor seems to think >> this is normal and just increases his medicine. I guess I just want >> to >> know if this is how it goes. I feel we are ignorantly just doing >> what >> we are told to do and hoping that we are doing the right thing.. >> Suecg