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> > a review of the latest ivan video: > A PARKINSON'S NIGHTMARE - FACING FORECLOSURE. > > This must clearly be the best. > In its simplicity, it tells the story of Ivan Suzman (50/39/36), > internationally known PWP and vocal PIEN member, > and contributor of many ideas. > It chronicles the financial downfall and the destruction of his life, > not by Parkinson's, per se, > but by society's lack of understanding > of the effect PD has on his life, > and what his basic needs are in order to survive > It is not a pretty picture. > > Ivan has obviously aged since the last televised interview, > and he looked extremely tired. > We see him going into an off period - > and thank you ivan, for allowing yourself > to be filmed in that state. > It had a profound effect > on the people > watching the video .- members of my YOPD support group > > I think this little glimpse > into the struggles and problems > ivan has been facing > is a marvelous opportunity > for us to show the general public > and the people who deal with pwps > on an every day basis > and yet have no real understanding of their needs - > hospital staff, social workers, social services > clerks, lawyers...... > > (AND HUMAN RIGHTS COMMISSIONERS!) > > hilary blue (50/33/24).