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Chris, On December 14 I celebrated the fifth anniversary of my left pallidal DBS, the first in North America. Pre-op I was in the 90th percentile of PWPs; now I'm in the 10th percentile. Would you be interested in vetting a draft of the second edition of my booklet "Neurosurgery for Parkinson's: a patient's perspective"? ----- Original Message ----- From: "Chris van der Linden" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, December 30, 1999 4:16 AM Subject: Re: Benefits of DBS > > So what are these changes , dont keep us in the DARK> > > I need some changes as my benefit from the op 2 years ago is gradually > > deminishing and my doctor has made many adjustments with out a great deal > of > > progress. > > Dear DBSers, > > There is a difference between stimulation adjustments of STN and pallidum, > so you cnnot compare the two. > In addition, there is a difference among STN patients or among pallidal > patients. > The adjustments need to be made systematically and PREFERRABLY in the > hospital. > A sudden improvement after an adjustment may just be a placebo effect, so > you have to wait some days to see whether the result is sustained. > Adjustments should be made by a physician specialized in the field and NOT > BY A NURSE. > As a matter a fact the Neurological Programmer for making the adjustments > states that this device should be restricted for sale, distribution, and use > by a physician. > Advice on which stim. parameters are the best is very difficult because of > interindividual differences. > > Good luck, and a happy 2000 for you all. > > Chris van der Linden, M.D. >