When I read the item on Wilsons it brought back the Fall I eas 15,had just started 9th grade and got Hepitites. (probably spelled wrong) Anyway ,I remembered that I was put in a room alone and mother sterelized everything I came in contact with,and feed me a lot of grapefruit. Any kind of fruit in those days was not seen in our home,so she was doing what the Dr. told her. Then the other things I read fit more with what is going on with me. I'm still anxious,but Jan.7 Maybe I'll find out something positive. Shirley -----Original Message----- From: Charles T. Meyer, M.D. <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Thursday, December 30, 1999 10:46 AM Subject: Re: Wilson Disease >Debbie, > >The advice about Wilson's Disease especially from Ray is excellent. >Wilson's is one of the "Rule outs" most neurologists check at the time that >they suspect PD and it can be treatable. What I remember from med school is >the Kayser-Fleisher Ring which can form from deposits of copper around the >Iris (colored portion) of the eye and copper metabolism. However my >diagnosing neurologist checked for and found an arcus senilus which can >appear like a Kayser-Fleisher ring and double checked to see if I had >Wilson's Disease. (Which I didn't have) > >It is extremely rare but the fact that you had a cousin that had the >illness increases the risk significantly. Your mother probably does not >have Wilson's Disease but it absolutely should be checked for. > >Charlie > >----- Original Message ----- >From: Debbie White <[log in to unmask]> >To: <[log in to unmask]> >Sent: Wednesday, December 29, 1999 5:46 PM >Subject: Re: Wilson Disease > > >> Thanks to Rita, Sharon, Ray, Bill, Bob, Jane, and Shirley -- who responded >> to my inquiry about Wilson disease. >> >> I was curious because we have a cousin in England who died during a liver >> transplant, necessitated by Wilson. When I looked into it and saw that it >> had neurological symptoms close to my mom's, I wondered whether testing >for >> it was routine. In any case, my mother will be asking her doctor ASAP. >> Thanks again. Debbie >> >> Debbie White >> >> [log in to unmask] >> >> > -----Original Message----- >> > From: Parkinson's Information Exchange Network >> > [mailto:[log in to unmask]]On Behalf Of Edward Kleinmeyer >> > Sent: Wednesday, December 29, 1999 3:51 PM >> > To: [log in to unmask] >> > Subject: Re: Wilson Disease >> > >> > >> > Wow,I read the article on Wilsons and was in shock. I have been thinking >I >> > have PD and It's more likely it's Wilsons. I will be glad when Jan 7 >gets >> > here so I can go to the Neurolegist and find out what is going on >> > for sure. >> > Thanks for the information. Shirley >> > -----Original Message----- >> > From: Bob Anibal <[log in to unmask]> >> > To: [log in to unmask] <[log in to unmask]> >> > Date: Wednesday, December 29, 1999 7:07 AM >> > Subject: Re: Wilson Disease >> > >> > >> > >Besides the copper test, there is an abnormality of the retina not >> > generally >> > >known. >> > >Bob Anibal >> > >----- Original Message ----- >> > >From: "William A. Parrette" <[log in to unmask]> >> > >To: <[log in to unmask]> >> > >Sent: Wednesday, December 29, 1999 7:29 AM >> > >Subject: Re: Wilson Disease >> > > >> > > >> > >Hi all, >> > > >> > > On Wed, 29 Dec 1999, the digest contained: >> > > >> > >> From: Debbie White <[log in to unmask]> >> > >> Subject: Wilson Disease >> > >> >> > >> In coming up with a diagnosis, was anyone tested for Wilson disease? >> > >Thanks. >> > >> >> > >> Debbie White >> > >> [log in to unmask] >> > > >> > > Way, way back in 1995 -- when my symptoms first started catch- >> > > ing my attention -- the first neurologist I went to (out of 4 :-( >> > > ) tested for this disease first. He told me that it was rare but >> > > that it's symptoms were almost identical to the ones I was ex- >> > > hibiting. >> > > >> > > If I remember correctly, the test involved checking for abnor- >> > > mally high levels of copper in the liver ... I think. >> > > >> > > Here's a link I found -- among several related links for other >> > > disorders that have similar symptoms on my Web site -- that talks >> > > a little about Wilson's Disease: >> > > >> > > http://wemove.org/wil.html >> > > >> > > Take care ... >> > > >> > >Bill-- >> > > ...who has been told to drive defensively & has considered >> > buying a tank. >> > > (42?) |\__/| .~ >~. >> > >.___. William A. ....._..._ .......7177 Heritage Drive\- >> > /o=o'`./ .'+ >> > >| _ \__ _ _ _ _ _ ___| |_| |_ ___ .Westchester........| {o__, >> > \ { | >> > >| _/ _` | '_| '_/ -_) _| _/ -_).OH 45069-4012......| / . . >> > ) \ | >> > >|_| \__,_|_| |_| \___|\__|\__\___|.513/779-0780.......| `-` >> > '-' \ } | >> > >..... http://w3.one.net/~wap/ .... [log in to unmask] .......+- >> ( >> > )_.' -+ >> > > '---.~_ _ _| >> > >>