Thanks to Rita, Sharon, Ray, Bill, Bob, Jane, and Shirley -- who responded
to my inquiry about Wilson disease.
I was curious because we have a cousin in England who died during a liver
transplant, necessitated by Wilson. When I looked into it and saw that it
had neurological symptoms close to my mom's, I wondered whether testing for
it was routine. In any case, my mother will be asking her doctor ASAP.
Thanks again. Debbie
Debbie White
[log in to unmask]
> -----Original Message-----
> From: Parkinson's Information Exchange Network
> [mailto:[log in to unmask]]On Behalf Of Edward Kleinmeyer
> Sent: Wednesday, December 29, 1999 3:51 PM
> To: [log in to unmask]
> Subject: Re: Wilson Disease
>
>
> Wow,I read the article on Wilsons and was in shock. I have been thinking I
> have PD and It's more likely it's Wilsons. I will be glad when Jan 7 gets
> here so I can go to the Neurolegist and find out what is going on
> for sure.
> Thanks for the information. Shirley
> -----Original Message-----
> From: Bob Anibal <[log in to unmask]>
> To: [log in to unmask] <[log in to unmask]>
> Date: Wednesday, December 29, 1999 7:07 AM
> Subject: Re: Wilson Disease
>
>
> >Besides the copper test, there is an abnormality of the retina not
> generally
> >known.
> >Bob Anibal
> >----- Original Message -----
> >From: "William A. Parrette" <[log in to unmask]>
> >To: <[log in to unmask]>
> >Sent: Wednesday, December 29, 1999 7:29 AM
> >Subject: Re: Wilson Disease
> >
> >
> >Hi all,
> >
> > On Wed, 29 Dec 1999, the digest contained:
> >
> >> From: Debbie White <[log in to unmask]>
> >> Subject: Wilson Disease
> >>
> >> In coming up with a diagnosis, was anyone tested for Wilson disease?
> >Thanks.
> >>
> >> Debbie White
> >> [log in to unmask]
> >
> > Way, way back in 1995 -- when my symptoms first started catch-
> > ing my attention -- the first neurologist I went to (out of 4 :-(
> > ) tested for this disease first. He told me that it was rare but
> > that it's symptoms were almost identical to the ones I was ex-
> > hibiting.
> >
> > If I remember correctly, the test involved checking for abnor-
> > mally high levels of copper in the liver ... I think.
> >
> > Here's a link I found -- among several related links for other
> > disorders that have similar symptoms on my Web site -- that talks
> > a little about Wilson's Disease:
> >
> > http://wemove.org/wil.html
> >
> > Take care ...
> >
> >Bill--
> > ...who has been told to drive defensively & has considered
> buying a tank.
> > (42?) |\__/| .~ ~.
> >.___. William A. ....._..._ .......7177 Heritage Drive\-
> /o=o'`./ .'+
> >| _ \__ _ _ _ _ _ ___| |_| |_ ___ .Westchester........| {o__,
> \ { |
> >| _/ _` | '_| '_/ -_) _| _/ -_).OH 45069-4012......| / . .
> ) \ |
> >|_| \__,_|_| |_| \___|\__|\__\___|.513/779-0780.......| `-`
> '-' \ } |
> >..... http://w3.one.net/~wap/ .... [log in to unmask] .......+-
(
> )_.' -+
> > '---.~_ _ _|
>
