Thank you, Kathy. You are very kind.    Carole

--- Kathie J Creveling <[log in to unmask]> wrote:
> Dear Carole, what can one say at a time like this for
> you? How very sad to
> hear of what has happened to you. My prayers are with
> you. Kathie Creveling
> ----- Original Message -----
> From: Carole Hercun <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Monday, January 03, 2000 4:35 PM
> Subject: Re: price of PD medication / Another Perspective
>
>
> > Hi Charlie and Chris: Just to put this in perspective.
> I
> > had the unfortunate occurrence of being 'stuck' today
> with
> > a needle I had used on a patient of mine with
> full-blown
> > AIDS and Hepatitis. (The so-called safety mechanism on
> the
> > syringe was apparently unsafe.) The infectious disease
> > people said that the prophylactic treatment had to be
> > started within hours to be effective. Therefore I had
> to
> > pay out-of-pocket to the closest pharmacy that had the
> 3
> > AIDS drugs I needed (which will be reimbursed.) The
> point
> > of all this is that the cost for a 7 day supply was
> > $1,000.00 and I think that is criminal in a country as
> > wealthy as the U.S.
> > These are patients with a disease with a 100% mortality
> > rate and this is what they are expected to pay?
> >                   Carole
> > P.S. Don't know yet what cost of Hepatitis globulin
> will
> > be.
> > --- "Charles T. Meyer, M.D." <[log in to unmask]> wrote:
> > > Chris-
> > >
> > > That strategy makes sense except for the fact that
> > > customs might confiscate
> > > meds being imported into at least the US.  I have
> heard
> > > of such cases where
> > > meds from Canada were taken at the border when there
> were
> > > large amounts
> > > bought by US citizens in Canada.
> > >
> > > Charlie
> > >
> > > ----- Original Message -----
> > > From: Chris van der Linden <[log in to unmask]>
> > > To: <[log in to unmask]>
> > > Sent: Monday, January 03, 2000 2:20 AM
> > > Subject: Re: price of PD medication
> > >
> > >
> > > > Hi everybody,
> > > >
> > > > There is a simple way to have the medication at a
> lower
> > > price, but all
> > > > members of the network have to participate.  Just
> list
> > > the price of
> > > > anti-Parkinson medication (either per tablet, or
> per
> > > 100 tablets in the
> > > > local currencies) on this list and than we will
> compare
> > > the prices. We
> > > will
> > > > than purchase the medication from a country with
> the
> > > lowest price and
> > > > distribute it to the members, who pay too much.
> > > Remember (especially for
> > > > the USA members), that for example Sinemet 25/100
> is
> > > the same in each
> > > > country, from the same company, so don't be afraid
> that
> > > you will get
> > > > something else or a different concentration etc.
> of a
> > > specific
> > > medication.
> > > > Sometimes, medication in different countries have
> > > differerent names, to
> > > make
> > > > it more complicated for the "consumers". Therefore,
> I
> > > suggest we use the
> > > > generic name if applicable. Here is a list of
> > > frequently used
> > > anti-Parkinson
> > > > medication:
> > > > levodopa/carbidopa                    Sinemet
> > > > levodopa/benserazide                Madopar/Prolopa
> > > > selegiline
> > > Eldepryl
> > > > amantadine
> > > Symmetrel/Amantan
> > > > entacapone                                   Comtan
> > > > tolcapone
> Tasmar
> > > > trihexyphenidyl
> Artane
> > > > orphenadrine                                Disipal
> > > > ropinorol
> Requip
> > > > pergolide
> Permax
> > > > bromocriptine
> Parlodel
> > > > pramipexole
> Mirapex
> > > > etc.
> > > >
> > > > The pharmacological companies won't like this, but
> this
> > > is one way of
> > > > showing them that we can bypass their high prices
> in
> > > certain countries.
> > > > Maybe, they will than start to adjust their prices
> more
> > > uniformly.
> > > > It does surprise me again that Parkinson support
> groups
> > > don't put pressure
> > > > on companies and/or governments to lower the prices
> of
> > > meds.
> > > >
> > > > Good luck and again a happy and healthy 2000.
> > > >
> > > >
> > > > Chris van der Linden, M.D.
> > >
> >
> > __________________________________________________
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>

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