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PARKINSN  January 2000, Week 1

PARKINSN January 2000, Week 1

Subject:

Re: symptoms of PD/Looong Reply

From:

Edward Kleinmeyer <[log in to unmask]>

Reply-To:

Parkinson's Information Exchange Network <[log in to unmask]>

Date:

Fri, 7 Jan 2000 14:51:58 -0500

Content-Type:

text/plain

Parts/Attachments:

Parts/Attachments

text/plain (83 lines)

Thanks Barb, I seen the neuroligist this A.M. and he said ( I don't think
tou have PD). But he could not give me any answers to questions like, why I
get chocked,why I shake,why I can't write anymore, why my chin  trimbles,why
my legs and feet swell and ache,why my teeth don't fit even after I have had
them relined 6 months  or so ago,why my vision has changed even after I had
them checked 1 yr. ago,why I have ringging in my ears. All he done was a
visual check, and sent me for 2 blood tests. 1 for thyroid 1 for enemea.
Your experienced with this, Please tell me if I am off base to feel less
than satisfied with this evaluation? Be honest,I'm a big girl. Thanks
Shirley
-----Original Message-----
From: Barb_MSN <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Friday, January 07, 2000 11:49 AM
Subject: Re: symptoms of PD/Looong Reply


>Shirley....
>
>I've had  problems swallowing and don't have
>dentures (lotsa root canals tho)
><UGH!>
>
>In my research, I've come to the conclusion that the dental
>and throat aspects of PD are either sadly overlooked by
>the respective medical professionals who should be up
>on these type problems or they just don't know all that much
>about what's going on with the average PD patient
>vis a vis dental/throat problems (and I DO recognize these
>are two different  medical modalities - however what affects
>one can so easily affect the other...)
>
>I'd like to find a savvy dental specialist whose "savviness"
>and interest leans towards helping the patient with PD.
>I'd also like to find the same with a throat and  neck specialist
>(and the latter two seem tot go hand in hand in the medical
>world).
>
>So far, I've been to the best that UCLA has to offer
>(Dr. Gerald Berke) and found the medical equivalent of
>a "one trick pony, " when it comes to helping the PD patient.
>
>I was able to get collagen injections into m y vocal
>cords, however, when my body began absorbing the
>collagen within 12 hours of getting the injections (sigh) that
>was that, as far as anything else in the pipe line other than
>conventional speech therapy (been there, done  that) <ditto
>the Lee Silverman speech therapy>
>
>It wasn't the MD who told me about voice amplifiers - - -
>I came across the voice amplifier I've been using myself
>(and it does the job well), however, I DO recognize that
>to be another medical "band aid" that doesn't treat or
>cure the  underlying problem(s).
>
>In my case, IF I wanna be heard when I speak (And I DO!),
>I'm gonna have to settle for being "Bionic Barbie," and just
>plan on taking my voice amplifier everywhere I go.. much
>to the chagrin of my younger (31 years old) daughter who
>recently asked me if I wasn't using the amplifier to get
>attention?  (OYE!!!  I can sure think of other ways to get
>attention, tho I must admit that this "bionicness" HAS
>caused folks to ask me a LOT of questions  about  WHY
>I need the amplifier to be heard.   And I  DO look at that as
>an open door to do a some PD advocacy.
>
>In a rush - contractor due any minute - sorry about the typos...
>
>Barb Mallut
>[log in to unmask]
>-----Original Message-----
>From: Edward Kleinmeyer <[log in to unmask]>
>To: [log in to unmask] <[log in to unmask]>
>Date: Thursday, January 06, 2000 9:36 PM
>Subject: symptoms of PD
>
>
>I go to neuroligest tomorrow for testing. Thought maybe someone
>could tell me, I have been having trouble chewing and my dentures
>don't fit well any more,also I seem to be choking a lot . I have
>had my dentures relined in the last 8 months but I seem to be
>right back where I was before. Is this just another symptom? I'll
>admit that I am scared.  Shirley

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December 1998, Week 5
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January 1998, Week 1
December 1997, Week 5
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December 1997, Week 3
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November 1997, Week 3
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December 1995, Week 5
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