thanks for the information on sites it looks magnificent
judy

>From: Linda J Herman <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Parkinson's Web Sites
>Date: Sat, 15 Apr 2000 07:49:01 -0400
>
>       Thanks for your reply, Murray - I thought this site was great:
>Newly Diagnosed With PD
>http://spring.parkinsons.org.uk/spnewly.htm
>I couldn't connect to the FAQ site - could you check the URL?
>The Frequently Asked Questions About Parkinson's Disease
>http://etb.ninds.nih.gov/PDFAQ.html
>
>  I wasn't suggesting yet another PD web site - but  maybe links and
>access to some of the "gems" could be expanded and improved.  Also
>helpful is a short description of what the link is about, if it's not
>clear by the title.
>
>Below is a listing of Web sites that Barb Blake-Krebs, who is still
>recuperating, and I compiled for the appendix to our book on young onset
>PD, Behind the Masks, ( which is still under consideration for
>publication - they ask us to "be patient.") It is based on suggestions
>from the list and our own favorites, and is  open to other
>recommendations (especially for non U.S. organizations and young onset
>sites) -- or corrections if you note an error, or ommissions.  We will
>also look through all of Murray's recommened sites. Thanks
>Linda
>
>PARKINSON'S DISEASE ON THE WEB
>
>There are at least a few hundred web sites about PD. The following sites
>have been recommended  by members of the Parkinsn list  for being
>informative, accurate and up-to-date. Each category is in alphabetical
>order.
>
>Subject Directories and Indexes to other PD Web sites : some good places
>to start:
>Ask Noah: Parkinson's Disease
>http://www.noah.cuny.edu/neuro/parkin.html
>
>Index to Parkinson's Disease Information on the Internet.- one of the
>most complete and well indexed -  compiled by Phil Tompkins, PD list
>member.
>  http://www.pdindex.org
>
>Parkinsonian Links - created and maintained by Art Hirsch, PD list member
>
>http://www.fortunecity.com/meltingpot/farley/817/blynx.html
>
>Parkinson's Web - Massachusetts General Hospital
>http://neuro-chief-e.mgh.harvard.edu/parkinsonsweb/Main/PDmain.html
>(currently under construction)
>
>Young Onset  PD Sites
>
>Arlette Johnson APDA Young Parkinson's Information & Referral Center
>http://members.aol.com/apdaypd/young/index.html
>
>YOUNG ONSET PARKINSON'S DISEASE : an online article
>By Emma Bennion, list member
>http://www.parkinsonsdisease.com/lwp/lwp.htm
>
>Young Parkinson's Handbook (online version)
>http://neuro-chief-e.mgh.harvard.edu/parkinsonsweb/Main/YOPD_Handbook/YOP
>D_TOC.html#TOC
>
>"The Young Parkinson's patient" - an article by Dr. E. Montgomery
>http://neuro-chief-e.mgh.harvard.edu/parkinsonsweb/Main/Support/youngpark
>.html
>
>PD Organizations - all of these contain lots of good information, online
>publications and links to other PD web sites.
>
>American Parkinson Association
>http://www.apdaparkinson.com
>
>European Parkinson's Disease Association
>http://www.epda/home.html
>
>National Parkinson's Foundation (NPF):
>   http://www.parkinson.org.
>
>Parkinson Disease Foundation
>http://www.pdf.org/
>
>Parkinson's Action Network (PAN)
>  http://parkinsonsaction.org/
>
>Parkinson's  Association of  Western Australia
>http://www.quartec.com.au/parkinsons/
>
>Parkinson's Disease Society  of the United Kingdom
>http://www.shef.ac.uk/misc/groups/epda/parkuk.htm
>         see also:
>The Newly Diagnosed - from the web site of SPRING, (Special Parkinson's
>Research Interest Group): official Special Interest Group for Medical
>Research, Parkinson's Disease Society of the UK.
>http://spring.parkinsons.org.uk/spnewly.htm
>
>Parkinson's Foundation of Canada
>http://www.parkinson.ca/
>
>Parkinson's Unity Walk
>http://www.parkinsonwalk.org
>
>  We MOVE _ World wide Education and Awareness for Movement Disorders
>http://www.wemove.org/
>
>World Parkinson's Disease Foundation
>http://www.wpda.org/
>
>Other PWP recommended web sites
>
>AWAKENINGS  : Current news, treatments, research, links to PD
>organizations and support groups from around the world.
>www.parkinsonsdisease.com
>
>Current Parkinsn's List E-mail messages: web site maintained by list
>member John Cottingham. View the 50 most recent PD list messages
>http://www.ionet.net/~jcott/parkmail/maillist.html
>  Also see John's other web sites, including:
>Parkinsn List Drug database - information on PD drugs and interactions
>with other medications.
>http://www.ionet.net/~jcott/homepage/drugdb/drugdb.html
>Parkinsn Archive Treasures
>http://www.ionet.net/~jcott/homepage/archive/patp.html
>
>Diagnostic criteria for PD -  from the Archives of Neurology
>http://archneur.ama-assn.org/issues/v56n1/full/nsa7701.html
>
>James: a site about Parkinson's :  List member Simon Cole's website -
>the international online PD community, plus other informative links.
>http://james.parkinsons.org.uk/
>Also see:
>Parkinsn List Archives - searchable archives of the Parkinsn List  1994 -
>present.
>http //james.parkinsons.org.uk/search.htm>
>The Parkinson's community on the Internet
>http://james.parkinsons.org.uk/community.htm
>
>National Institute of Neurological Disorders and Stroke, NIH
>http://www.ninds.nih.gov/
>
>   see also: The NIH Parkinson's Disease Research Agenda (March 2000)
>http://www.ninds.nih.gov/whatsnew/pdagenda2000/nihparkinsonsagenda.htm
>
>The Newly Diagnosed  :  Helpful facts and information from the Parkinson
>Foundation of Canada.
>http://www.parkinson.ca/newlydiagnosed.html
>
>NPF Online Publications: Includes information on nutrition, exercise,
>speech, medications and much more.
>  http://www.parkinson.org/onlinpub.htm
>
>Parkinson's Facts:  basic information from the National Parkinson's
>Foundation
>http://www.parkinson.org/eduindex.htm
>
>The Parkinson's Institute: Parkinson's Disease information
>http://www.parkinsonsinstitute.org/parkinsons.html
>
>Parkinson's News From the Front Lines, compiled by Paul Mote - contains
>news, writings, etc. by PWP
>http://www.coyotewebart.com/parkinsons_news/
>
>PD Rating Scales (progression of the disease by stages)
>http://neurosurgery.mgh.harvard.edu/pdstages.htm
>
>the PieNET : the parkinson's information and exchange network - compiled
>and maintained by list member Janet Paterson - how to join, what PIEN is
>all about, meet some of it's members.
>http://www.geocities.com/janet313/pienet/index.html
>
>U.S., Canadian and Australian  Support Groups Database, created by list
>member Arthur Hirsch.
>http://www.fortunecity.com/meltingpot/farley/817/asupport.html

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