linda and yh
sometimes it is difficult to take one day at a time when you are young and
need to provide for the future of family
i am older, of course better, and dont feel the uncertainty/concern/distress
which a younger pd would feel
it is a difficult confrontation
judy


>From: Linda J Herman <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: PD Case profiles/history and Janet Reno
>Date: Tue, 25 Apr 2000 07:29:59 -0400
>
>Dear YH Tan and list,
>       As you will see each PWP experiences the disease differently,
>although it is generaally said that the progression tends to be slow in
>young onset cases. There are few statistics on young onset PD, and I
>don't know of any databases at this time. I was diagnosed at 45, about 4
>1/2 years ago, and I am still taking small doses of medication and
>continue to work. I think Murray's letter offered excellent advice to a
>newly diagnosed patient.
>         Most importantly, I think  is to learn as much as you can about PD
>and
>find a good neuro who is knowledgible about PD, and who will listen to
>you. Try to keep a positive attitude, and take life a day at a time. I
>think it helps  to take positive actions to fight PD and bring us closer
>to a cure  in whatever way you choose - through political action, fund
>raising, education, publicity - there are many different paths.
>            Did anyone else happen to see Janet Reno on Nightline last
>night. She was interviewed of course about the Elian case, but at the end
>Ted Koppel stated that his mother also had PD, and recalled she was told
>to try to avoid stress. He asked Janet how she was dealing with it. In
>her usual manner she replied that it does increase her tremors, but she
>doesn't let it stop her, and made it clear she could carry on with her
>job. She also stated she has many more "mountains to cliimb." I believe
>she is a great role model for other young Parkies, and wish her the best
>as she now faces questioning by some hostile members of Congress who are
>calling for hearings.
>        JUst wondering - if this is their way of further postponing action
>on issues like drug coverage, patient bill of rights, stem cell research,
>and all the rest?
>Linda

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