Nancy and all,

Sorry if I vented too much.  I did not mean to sound
mean , or not to recognize everybody's work.  It's
just so frustrating  struggling for 15 years since
age 35, and my energy has been low and sporadic,
after a long and lonely winter.  I guess my exasperation
just crawled out of its hiding place a bit too much.  I just
hate this d--- disease and everything it does to rob me
of my freedoms.
Hopefully I'll get re-energized soon-the cold and ice don't help.
again forgive me.

Ivan

On Sat, 22 Apr 2000 10:42:15 -0700 Nancy O McCaffrey <[log in to unmask]>
writes:
> Dear Ivan and all,
>
> I just read your letter asking if anyone out there is doing anything
> to
> promote the awareness of PD. I'm sure that none of us will ever do
> enough
> in the eyes of people with PD to speed up the finding of a cure for
> PD.
>
> However, I believe that there are many people working very hard to
> get
> the message out. Many of them do it in a very quiet way and do not
> look
> for recognition from the world. Many support groups actively present
> programs, put out newsletters, appear on local TV shows, etc.
>
> People like Dale Severance, Jim Cordy, the Tuchmans, Carol Walton,
> Joan
> Samuelson,just to name a few, have been doing an exceptional job in
> getting the message out.
>
> Our support group is small in comparison to some others, but we do
> all of
> the things that I mentioned above. We put out a newsletter. Two of
> our
> members appear on TV two or three times a year. Several write
> letters to
> the newspapers. We set up informational booths at Health Fairs. Four
> of
> us do informational programs to groups to explain PD to the general
> public.(We are the M&M Show). We are  extremely supportive of each
> other
> within our group which is what a support group should be for!
>
> I write this not to get recognition for our group, but to tell you
> that
> it does not always show when people work hard for their cause. I
> truly
> believe that there are many people doing their best in their own
> small or
> large way. Also many people with PD or other problems can not
> physically
> or emotionally do some of the things you ask.
>
> Many thanks to all of you who continue to work for PD! Keep up the
> good
> work!
>
> May you all be blessed this Easter weekend!
>
> Nancy McCaffrey  CG for Ed

^^^^^^  WARM GREETINGS  FROM  ^^^^^^^^^^^^  :-)
 Ivan Suzman        50/39/36       [log in to unmask]      :-)
 Portland, Maine    land of lighthouses           deg. F   :-)
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