Hey Barb,
My grandmother used to tell me that guilt was pretty much always
connected to the word "should".  I "should" be doing this, I "should"
have done that, I "should" be able to cope with........whatever.  She
was thrilled when I met a friend whose favorite saying is "Don't should
on me".  If you say it too quickly it can sound somewhat naughty, I
usually get a pretty good giggle out of it.  :O)  PWP or not, none of us
needs to feel guilty for doing whatever we have to do in order to
function as best we can.  Happy napping.  ;O)
Peace
Pat

Barb_MSN wrote:

> Thank you SOOOOO much for addressing the issue of "PWP GUILT"
> arising out of resting or napping during conventional "work hours"
> (generally accepted as being from 9:00 a.m. to 5:00 p.m. but in
> reality, that could go a coupla hours in either direction, and
> into the evening)
>
> I thought I was the only Parkie burdened by such guilt!  I
> regularly hold long inter-self discussions with my conscience
> trying to justify to myself that the guilt is tied into the
> Judeo-Christian work issue but know in my heart that's really not
> the cause.
>
> The cause of the fatigue IS Parkinson's (for almost 26 years),
> with the assistance from the assorted drugs we all seem to take.
>
> So how does one unload the burden of guilt that seems to hit so
> many of us?
>
> Barb Mallut
> [log in to unmask]
>
> -----Original Message-----
> From: Joan Hartman <[log in to unmask]>
> To: [log in to unmask] <[log in to unmask]>
> Date: Thursday, August 10, 2000 8:03 AM
> Subject: Re: Both PD & Non PD
>
> >Marjorie ...you wrote..."I'm still debating with myself is this
> is such a
> >bright idea to  always know what time it is."
> >
> >I found it very helpful to know what time it is and how often I
> woke up at
> >night...this gave me a better understanding of why I can be so
> tired during
> >the day on some days and feel great  on other days....it gave me
> the ability
> >to know that I had more sleep on some nights and less on
> others.....and I
> >didn't feel so guilty if I had to lie down for a half hour
> sometimes.
> >Joan Hartman
> >
> >----- Original Message -----
> >From: Marjorie L. Moorefield <[log in to unmask]>
> >To: <[log in to unmask]>
> >Sent: Thursday, August 10, 2000 7:08 AM
> >Subject: Both PD & Non PD
> >
> >
> >>         I bought some new furniture for my bedroom yesterday,
> >> I went to buy a new  mattress and box springs for myself and
> got to
> >> looking around and found a sale on a nice chest of drawers with
> a bookcase
> >top.
> >> I needed the bookcase top almost more than I needed the chest
> >> of drawers.
> >>   So I bought it and my friends picked it up for me
> >> and delivered it to the house and then took my old chest of
> >> drawers as payment.  I came out the winner on that, I'll tell
> >> you. The mattress set will be delivered on 17 August.
> >>
> >> The point of all this aimless rambling being: I can finally
> >> have a clock in my room which I can see at night.
> >> I have a decorative Anniversary Clock, but I can't see it
> >> in the dark.
> >> By being able to see the time at night I found out that every
> >> 1.5 to 2 hours I wake up to turn over.  I knew I couldn't turn
> >> over without partially waking up, I have to tell myself to turn
> over,
> >> but I had no idea it was so often.  Also found out that if I
> sleep
> >> more than a 3 hour stretch of time, that I'm completely frozen
> >> when I awaken ,and the only thing which works is my eyelids.
> >> Then I have to go through the drill of getting everything to
> move.
> >> Which I'm sure happens to every Parkie in the world.  Its just
> >> that all these years I've never known what time it
> >> was during the night.
> >> I'm still debating with myself is this is such a bright idea to
> >>   always know what time it is.
> >> I put my watch away when I retired, since I can no longer
> >> hook the latch anyway. PD strikes again! So now I'm completely
> >> unadorned, no earrings nor even my watch!!
> >>
> >> Pinkie Swindler,
> >> I think that sillyness was great!!  We need more of it.
> >> Life is too serious as it is!!
> >>
> >> Camilla,
> >> I'm sure Peter and I could swap library tales till the cows
> come home
> >> and never repeat the same ones twice.
> >> My favorite one concerning kids, is during Black History Month
> >> two young boys came to the reference desk for help, librarians
> >> are not allowed to do their research for them, just lead, guide
> ,and
> >> direct them.
> >> I asked them if they had picked a subject for their "Famous
> Black
> >> Women in Early American History" assignment and they became
> very
> >distraught
> >> when told that "Whoopie Goldberg", would not be considered
> >> in that category.
> >>
> >> just me,
> >> Marjorie
> >>