what a dreadful experience.
 i dont think i have ever had quite as bad a one myself, but there have been a
couple of doozies that went on for hours.
But... i always load up on protein - anything i have in the house, from cheese
to steak to plain cold milk - anything with a reasonable protein content.
Also, were you alone? i have found that when my beloved wraps two loving arms
about me and hugs me gently and tenderly, but firmly, i will calm down. not
completely, but enuff to catch a breath or two.
but i still prefer the dyskinesia to being off - the spasms and tightness of
dystonia, the freezing in a doorway - it took me 10 minutes to get out of my
own front door yesterday - the sudden crashes without warning as i switch from
a reasonable 'on' state to collapsing on the floor in the supermarket - 'off'
in less than  two minutes -0 i would still rather be dyskinetic.
but this is the reason i am participating in the nih study on dyskinesia.  may
i suggest that you consider trying it too? If nothing else, we would get to meet!


hilary blue
51,32,23


> Sandra Norris wrote:
>
> Dyskinesia, A Dance I Would Prefer Not to Be a Part Of !
>
> Last Thursday, because of a mistake I had made in mixing my Liquid
> Sinemet I suffered eight hours of dyskinesia. After the dyskinesia
> ended, to say the least, I was as weak as ten-day-old dishwater. I
> could not find a comfortable position to sit. I could not find a
> comfortable position to lay down. I was in so much pain that I was
> sure that I would lose my mind before morning dawned.
>
> At 3:00 in the morning I found myself in a bathtub filled with as hot
> water as I could stand. I had so many emotions going through me. You
> would think after 20 years of this disease called Pd I would be more
> careful in mixing my Sinemet. Future Hint: Do not mix medicines
> without proper lighting. It was not enough to be battered and bruised
> from the dyskinesia; I had to add misery by berating myself for the
> mistake I had made.
>
> Before I knew it I had my arms literally wrapped around my legs in a
> crunched up sitting position. I had begun to weep and to cry out from
> the pain. I actually felt if I could just crawl inside myself, inside
> under the skin, deep within, maybe, just maybe I could search out and
> destroy the Charlie Horses that had taken up residence in every muscle
> of my body. I came to a realization that there is no way possible to
> turn myself wrong side out. I sat in the hot water and actually
> imagined turning myself wrong side out. By turning wrong side out I
> would not be able to see the many bruises that the dyskinesia caused.
> If the bruises were hidden, no stranger would see them. No one would
> ask where the bruises came from.
>
> Dyskinesia does not have the manners to first ask your permission to
> dance. It will rudely sweep you off your feet and commence to force
> you into a jitter-bug from hell. All the while, you are praying that a
> polite entity would tap you on the shoulder and gently take you in its
> arms and whisk you away to a calmer place, a place of healing, a place
> of rest. Is there such a place where there is no PD?
>
> Until that heavenly call, Naproxen and Flexeril will have to heal the
> hurts.
>
> Sandra Norris
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> Sandy Norris 40/28/20 check my new site..
> www.plwp.org/sandys_parkie_porch.htm
> "Faith is the daring of the soul to go farther than it can see."