Dear C- Just a brief note-have just come from 3 days at one
of our "Indian" casinos here in Connection-a forensic
conference combining my favorite things-F.B.I., autopsies,
serial murderers,high-profile murder cases taught by people
who were there AND slot machines. Have to work tomorrow and
am tired, and not so literate. Just my 2 cents worth re:
Peter-feel free to ignore it- I personally am a big fan of
Clozaril-blood tests are every week for first 6 months,
then twice a month. An added bonus, since Peter is losing
weight, is that patients usually gain weight on it. My drug
of choice should I ever need it-of course, if I need  it, I
have probably forgotten I agreed to take it-
                      Love and Good Night, TiredGrinch
--- Camilla Flintermann <[log in to unmask]> wrote:
> So many have written from both lists to share ideas and
> give support---is
> this a great gang,
> or what ???  Thanks to all of you.  At the moment we are
> OK---though he
> refused his Sinemet at 11:30 AM  and again at 12:30
> PM(meaning he'd had
> none since 9:30AM) and was totally uncooperative, I just
> backed off and
> left him alone. About  1:15PM he called me and wanted
> help getting to bed
> to lie down. (this morning he had gotten up ahead of me
> and nearly dressed
> himself, moving well!)  He then took Sinemet without a
> murmur ---I couldn't
> help pointing out that he was so off because he needed it
> .....
> Got him to bed with great difficulty, using walker+gait
> belt,and all my
> strength.
>
> After sleeping for more than an hour he got up by
> himself, and took meds
> 2:30 and 4:30 PM with no problem.  Also a small snack of
> Ensure and apple.
> We'll see about supper.....
>
> I have decided to eliminate the 1 extra Seroquel, which
> the MDS neuro added
> recently due to increasing hallucinations. I believe it
> may contribute to
> the weakness and shakiness, from what I read in the
> package insert. (Yes,
> Katie--I do check those and call pharmacists !)  He has
> also been taking
> Vioxx for the pain of the vertebral compression fracture
> back in early
> January, and weakness is one side effect of that.  As the
> pain is better, I
> am cutting down on the Vioxx as well.  My usual
> assumption, paraphrasing
> the slogan of the Clinton campaign, is "It's the meds,
> stupid!"   (Delda,
> Marie, Janet, Barb and others--note taken....)  He has
> low blood pressure,
> but it is well maintained on Florinef, and he has never
> seemed to have the
> orthostatic hypotension  Barbara S. wondered about.
>
> BTW--Seroquel (the anti-psychotic taken for
> hallucinations and confusion)
> has seemed to work well for him for more than a year.  I
> asked his neuro
> about Clozaril recently, and he felt Seroquel was
> preferable due to the
> blood tests required for Clozaril, which he still says
> are weekly.
>
> We're hangin' in, hangin' on, and living one HOUR at a
> time right now.
> Many of you will know exactly what I mean by that!
> Thanks again for all
> the caring and concern---I share this partly to relieve
> my own feelings,
> and partly  in the hope it may be helpful to others.
> When I get a response
> from the neuro, I'll let you know what he says.
>
>
> Camilla Flintermann, CG for Peter 82/70/55
> Oxford, Ohio
>             <[log in to unmask]>
>
>            on the web at
> http://members.tripod.lycos.nl/genugten/flinterm.htm
>            and also at
> http://www.geocities.com/camillahf/index.html
>
>                "Ask me about the CARE list for Caregivers
> of Parkinsonians ! "
>            And visit the CARE webring at
> http://www.crosswinds.net/~caregivers/index.html
>


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