Hi,

I was recently told by my neuro to just take sinemet 25/100 yellow pill,
about 3 hours in between and 1 50/200 CR at bedtime. I have pleaded with him
to let
me take a higher dosage of the CR and regular, less
frequently, but he wants to see how I do with just the
regular, for 1 week. True, that  is the only thing helping me now, except
that I rarely make it to 3 hours.
Maybe this is the beginning of the end. BADABING.

Mario
----- Original Message -----
From: "wojciech antkowiak" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, May 01, 2001 12:35 PM
Subject: Re: Fw: Parkinsons? Long


> Could you pls advise WHY your neuro a PD specialist
> wants  you to go off your drugs completely.  I would
> say  that he probably does not believe in your PD  at
> all.  pls clarify.
> rgds
> --- Chuck Sarley <[log in to unmask]> wrote:
> > ----- Original Message -----
> > From: Chuck Sarley
> > To:)
> > Cc: [log in to unmask]
> > Sent: Tuesday, May 01, 2001 2:34 PM
> > Subject: Parkinsons? Long
> >
> >
> > Hi all ;
> > It is now about 4 years since I was diagnosed with
> > PD. I was advised at that time that it would be a
> > slow and progressive problem.
> >
> > Well here we are 4 years later and the problem has
> > been  anything but slow and progressive. I have gone
> > from working full time to not being able to work at
> > all. I started with a mild  tremor witch is about
> > the same. My fine motor skills in my hands has
> > greatly diminished to where it is a real chore to
> > type this posting.
> >
> > My walking and balance are almost  gone to the point
> > of having to use a walker at  times. I leave the
> > house only by vehicle as I am unable to walk any
> > distance. Going from the house to the mail box is
> > about all I can handle. It has also become a problem
> > to sit erect at times,
> >
> > I saw my Neuro last week and was advised to start to
> > reduce and eliminate my meds one at a time. Come
> > back in 4 months and tell me how it went. I am on
> > Sinemet 50/200 four times a day, Comtan 200 with the
> > sinemet, Mirapex 25 three times a day. I was on
> > dostenex for some time but could not afford the
> > $230.00 for 8 tablets. He advised to start with the
> > Mirapex then the Comtan and see how it goes. This
> > Neuro is supposed to be the top PD Neuro in the
> > area.
> >
> > I am at a los ass to what to do or where to turn for
> > help. Does
> > PD progress at this raapid a rate at times?  Has any
> > one had this type of problem and how have you dealt
> > with it. I am starting to apply for SS disability
> > and for my private disability. I will finish with my
> > working and accrued benefits in June.
> >
> > Sorry for the length of this posting
> >
> > Chuck Sarley
> > [log in to unmask]
> > [log in to unmask]
> >
> >
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>
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