I believe the latest slogan is "in our lifetime". And let us not forget
the wise words from the Neuros: "you could not have chosen a
better time to get PD".

My "5 years" come due in December 2001.

Mario


----- Original Message -----
From: "janet paterson" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, July 07, 2001 2:12 AM
Subject: "The Big Lie" - cross-posted


> hi all
>
> the following is cross-posted from the mgh pd webforum
>
> janet
>
> ----------------------------------------------------------
>    Author      Topic:   " The Big Lie "
>    Chy7        posted 07-07-2001 12:14 AM
> ----------------------------------------------------------
> Many doctors tell their new PD patients, don't worry you
> don't die from Parkinson's Disease. I just read dozens of
> people's remarks on the Stem Cell Petition who say
> otherwise. You may die from something else before PD gets
> you but as of now it is going to get you someday. Chy7
>
> ----------------------------------------------------------
>    lc_lil      posted 07-07-2001 12:40 AM
> ----------------------------------------------------------
> Hey Chy,
>
> Dropping in to cheer us up eh? Well another big one was
> the "cure in 5 years"; hope the new and extended
> prediction of "cure in 10" isn't. But hey they have good
> intentions.
>
> lil
>
> ----------------------------------------------------------
>    Chy7        posted 07-07-2001 01:02 AM
> ----------------------------------------------------------
> I knew you would be first. Also 3 years left on the 5 it
> is going to happen wait and see.
>
> ----------------------------------------------------------
>    LynnZ       posted 07-07-2001 04:18 AM
> ----------------------------------------------------------
> Why do so many neurologists know so little about PD?
>
> ----------------------------------------------------------
>    janet313313 posted 07-07-2001 04:36 AM
> ----------------------------------------------------------
> neurologists are 'victims' of the same lack of
> parkinson's awareness that has shrouded us all
>
> until 10 years ago or so
> there was no public disclosure of pd
>
> people with pd concealed their symptoms while they could,
> and when they couldn't, they went into hiding,
> figuratively and literally
>
> put it down to shame, despair, embarrassment, lack of
> acceptance, clinical depression, lack of support etc
>
> levodopa, the gold standard for symptom relief, was only
> discovered to be effective with pd 30-ish years ago
>
> we are all still learning how to best make use of it,
> plus all the other meds and procedures which have come
> along since
>
> hiding pd in the closet may bring some comfort to those
> tied up in shame knots,
> but dragging it out into the light is the only way to
> dispel ignorance, encourage better support and
> treatments, and raise awareness and demands for research
>
> and dragging pd out into the light is precisely what we
> are doing here and now
>
> janet
>
> ----------------------------------------------------------
> http://neuro-mancer.mgh.harvard.edu/ubb/Forum71/HTML/004820.html
>
>
> janet paterson: an akinetic rigid subtype, albeit perky, parky .
> pd: 54/41/37 cd: 54/44/43 tel: 613 256 8340 email: [log in to unmask] .
> snail mail: 375 Country Street, Apt 301, Almonte, Ontario, Canada, K0A 1A0
.
> a new voice: the nnnewsletter: http://groups.yahoo.com/group/janet313/ .
> a new voice: the wwweb site: http://www.geocities.com/janet313/ .
>
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