Hello Rob.  How are you doing on your vitamin regime?
I take it you still do not use Sinemet?  You mentioned doctor Perlmutter.  I
used to go to him when I was in Florida for the winters.  He is a good
neurologist.
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----- Original Message -----
From: "Schaaf Angus / Meadow Creek Ranch" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, July 07, 2001 6:41 PM
Subject: Re: "The Big Lie" - cross-posted


> Dear Janet .
> Wow , what a mouthful.  How right you are. The neuros know so little
because
> they dont take the time to understand the biochemistry of PD. Oh, the poor
> dears were so rushed through med school , so why take the time now. Who 's
> going to pay them to get educated now . They already have the shingle to
> PRACTICE.
> The pharmaceutical houses sure arent going to bother educating the
public -
> they would lose too much in revenue if they did that.
> For over  20 years the information on PD symptom relief has been out
there-
> just check NIH ,Medscape, etc. on the net. Dr Perlemutter runs a symptomic
> relief program thats helps NOW instead of waiting for all of the promiises
> of the CURE.  Dr. George Birkmayer didnt just fall of the turnip truck
with
> good relief for the PD victim without causeing the harm that Sinemet does
to
> the brain.
> We dont have to be victimized by ill-informed doctors who practice.
Just
> read the net ! It is out there.  Relief!!    Rob
>
>
> ----- Original Message -----
> From: "janet paterson" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Saturday, July 07, 2001 3:12 AM
> Subject: "The Big Lie" - cross-posted
>
>
> > hi all
> >
> > the following is cross-posted from the mgh pd webforum
> >
> > janet
> >
> > ----------------------------------------------------------
> >    Author      Topic:   " The Big Lie "
> >    Chy7        posted 07-07-2001 12:14 AM
> > ----------------------------------------------------------
> > Many doctors tell their new PD patients, don't worry you
> > don't die from Parkinson's Disease. I just read dozens of
> > people's remarks on the Stem Cell Petition who say
> > otherwise. You may die from something else before PD gets
> > you but as of now it is going to get you someday. Chy7
> >
> > ----------------------------------------------------------
> >    lc_lil      posted 07-07-2001 12:40 AM
> > ----------------------------------------------------------
> > Hey Chy,
> >
> > Dropping in to cheer us up eh? Well another big one was
> > the "cure in 5 years"; hope the new and extended
> > prediction of "cure in 10" isn't. But hey they have good
> > intentions.
> >
> > lil
> >
> > ----------------------------------------------------------
> >    Chy7        posted 07-07-2001 01:02 AM
> > ----------------------------------------------------------
> > I knew you would be first. Also 3 years left on the 5 it
> > is going to happen wait and see.
> >
> > ----------------------------------------------------------
> >    LynnZ       posted 07-07-2001 04:18 AM
> > ----------------------------------------------------------
> > Why do so many neurologists know so little about PD?
> >
> > ----------------------------------------------------------
> >    janet313313 posted 07-07-2001 04:36 AM
> > ----------------------------------------------------------
> > neurologists are 'victims' of the same lack of
> > parkinson's awareness that has shrouded us all
> >
> > until 10 years ago or so
> > there was no public disclosure of pd
> >
> > people with pd concealed their symptoms while they could,
> > and when they couldn't, they went into hiding,
> > figuratively and literally
> >
> > put it down to shame, despair, embarrassment, lack of
> > acceptance, clinical depression, lack of support etc
> >
> > levodopa, the gold standard for symptom relief, was only
> > discovered to be effective with pd 30-ish years ago
> >
> > we are all still learning how to best make use of it,
> > plus all the other meds and procedures which have come
> > along since
> >
> > hiding pd in the closet may bring some comfort to those
> > tied up in shame knots,
> > but dragging it out into the light is the only way to
> > dispel ignorance, encourage better support and
> > treatments, and raise awareness and demands for research
> >
> > and dragging pd out into the light is precisely what we
> > are doing here and now
> >
> > janet
> >
> > ----------------------------------------------------------
> > http://neuro-mancer.mgh.harvard.edu/ubb/Forum71/HTML/004820.html
> >
> >
> > janet paterson: an akinetic rigid subtype, albeit perky, parky .
> > pd: 54/41/37 cd: 54/44/43 tel: 613 256 8340 email: [log in to unmask]
.
> > snail mail: 375 Country Street, Apt 301, Almonte, Ontario, Canada, K0A
1A0
> .
> > a new voice: the nnnewsletter: http://groups.yahoo.com/group/janet313/ .
> > a new voice: the wwweb site: http://www.geocities.com/janet313/ .
> >
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