hi all

i did a search in simon coles' archives
for barb patterson's most recent posting of the guidelines
thank you simon!
since my website is a paean to pien since mom's day 1999.
i will take the liberty of adding this to the newbie section

janet

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Subj: List Charter/Guidelines Please Read & Keep
Date: 01/13 10:07 PM
From: [log in to unmask]
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Here is our List Charter/Guidelines document posted once more for our new
and returning members.  If you have any questions or feel that another
member is ignoring the terms of this document, please contact me OFF list.
Welcome back to Barb Mallut ... you were really missed by all of us.  I
agree that pearls and flannel jammies don't go together but what about
pearls & silk'y' jammies  which make it easier for us pwp's to turn over in
bed?  Barb

Parkinson's Information Exchange Network (PIEN) or ("Parkinsn List")

The Parkinson's Information Exchange Network (PIEN) or ("Parkinsn List") is
an open, unmoderated, internet discussion list for people with Parkinson's,
their caregivers both personal and professional and anyone with an interest
in Parkinson's.  The Parkinsn List began on November 9, 1993.  There are
now about 2000 members from more than 36 countries. The need has been
expressed for a reference document containing information about interacting
with the Parkinsn List.  This is that document.

Barbara Patterson, List Owner ([log in to unmask])

1. Preface
This charter of the Parkinson's Information Exchange Network (PIEN) or
("Parkinsn List") contains important policies and terms and conditions of
participation. People requesting to be subscribed to Parkinsn are informed
of the existence of the charter and how to access it at:

http://parkinsons-information-exchange-network-online.com/parkinsn.html

or to obtain a printable text copy at:

http://parkinsons-information-exchange-network-online.com/parkinsn.txt

Periodically, the Parkinsn Charter will posted as a message to Parkinsn.

By virtue of subscribing to PIEN, a person states that he or she has read
and understands the charter and agrees to the terms and conditions
contained in it.

The terms and conditions for participation may be changed by the List owner
solely at her discretion after notifying current subscribers of the
proposed change and providing them with sufficient opportunity (48 hours)
to un-subscribe from Parkinsn before the change is adopted.

Terms

PIEN = Parkinson's Information Exchange Network
"List" = Parkinsn email list which is a part of Parkinson's Information
Exchange Network.
List Owner= Barbara Patterson and/or her designees.
Moderator = Barbara Patterson and/or her designees.
Subscription = The process of interacting with the listserv in order to
receive posting privileges on the Parkinsn email list.
Review = a subscription option that requires messages to be approved by a
List owner or moderator prior to being posted to Parkinsn Parkinsn Charter
= This document which may also be known as Parkinsn Guidelines.

2. Purposes of Parkinsn
The purpose of the Parkinson's Information Exchange Network(PIEN) or
("Parkinsn List") is to provide a forum for people with an interest in
Parkinson's Disease to exchange information and experiences in a supportive
and positive environment. The discussion on the list varies from people
sharing their own experiences of orthodox and alternative treatments to
people discussing the emotional and social aspects of Parkinson's.

It is also the purpose of Parkinsn to maintain a repository of the
information shared on Parkinsn, so that this collective information is
available to inform and assist future, as well as current, List subscribers.

3. Responsibilities of List Owner and Subscribers
a)  The List owner is responsible for the management and administration of
the Parkinson's Information Exchange Network (PIEN) or ("Parkinsn List"),
which includes approving subscription requests, monitoring Parkinsn for
adherence to List policies, maintaining Parkinsn archives,
and maintaining Parkinsn Web site (P-I-E-N-O). The List owners are those
people designated in the Listserv header for Parkinsn. The List owners may
remove any designees upon his or her request, or for violating Parkinsn
policies or for inactivity. Any person so removed relinquishes any claims
of ownership and any presumed rights thereof.

**      Important policies regarding the direction, purposes, and
administration of Parkinsn may be  discussed on Parkinsn; however, the List
owner is ultimately responsible for establishing List policies.

B)  Subscribers are responsible for conducting themselves in accordance
with the policies contained in this Charter or Guidelines.

Parkinsn membership is multi-national, multi-cultural and
multi-denominational; therefore,  Parkinsn is not the forum for promoting
or criticizing ethnicity or religion. Since we are a multi-national
community, care has to be taken so as not offend the sensibilities of
multi-ethnic members. Off-color postings and comments damage our
cohesiveness.

Subscribers are free to discuss ideas, but disparaging remarks
directedtoward those who adhere to different viewpoints are not acceptable.

Keeping the spirit of loving, caring and respecting one another in the
forefront  in Parkinsn List discussions and the focus  balanced with those
ideals in mind is an important goal.

Humor and creative expression are appreciated but are not the main focus of
Parkinsn. Other forums are available which better specialize in these kinds
of postings. Those which reflect and/or express the realities of living
with Parkinson's either as a person with Parkinson's (pwp) or a caregiver
are always welcome on Parkinsn.

Organizations are free to use our hospitality to announce events that are
of interest to our community once they have identified themselves to the
list owner.

New members who introduce themselves or pose questions should be made to
feel welcome and receive a response to their questions and concerns.

4. Subscription Criteria
Parkinsn is open to all people with a legitimate, non-commercial interest
in Parkinson's who wish to exchange information and experiences with other
subscribers.

Professionals involved in the treatment of, or day-to-day living, with
Parkinson's are welcome; researchers studying Parkinson's are also welcome
as long as they do not conduct any research using the Parkinsn list members
or their messages without their informed consent.

Subscriptions are not accepted from those interested only in promoting
commercial products or services of any kind.

The decision to subscribe an individual to Parkinsn is solely that of the
List owner.

Mail management is the responsibility of the subscriber. One can either use
the instructions in the Welcome Letter or use the simplified mail
management options at:

http://parkinsons-information-exchange-network-online.com/mailopt.html

5. Moderation
Messages to Parkinsn are not moderated, that is, not reviewed by the List
owner prior to being posted. Parkinsn is "moderated" primarily by the
subscribers themselves, who have demonstrated uncommon courtesy, good
sense, and mutual respect throughout the history of Parkinsn. Subscribers
are expected to help maintain the co-operative and supportive nature of
Parkinsn and to adhere to Parkinsn posting guidelines.

Any question about a subscriber's behaviour on Parkinsn will be handled by
a List owner in private whenever possible. Repeated failure to adhere to
Parkinsn policies or posted guidelines may result in a subscription being
set to REVIEW, a subscription option that requires messages to be
approved by a List owner or moderator prior to being posted to Parkinsn.
The interpretation of adherence to Parkinsn policies and acceptable
behaviour on Parkinsn is solely the determination of the List owner.

No subscriber will be placed on REVIEW or removed from Parkinsn without
first being notified of the behaviour or actions considered unacceptable
and given the opportunity to correct the problem. The exception to this is
if a subscriber's actions are so egregiously offensive or sothreatening to
Parkinsn that immediate action must be taken.

Private communications among subscribers are not the responsibility of the
List owner. Subscribers should be aware that other subscribers may obtain
their e-mail addresses from messages posted to Parkinsn and that they may
receive unsolicited private e-mails from other subscribers. Subscribers are
normally expected to deal with such e-mails themselves, as they would any
other private e-mail. A subscriber may be removed from Parkinsn for
harassing, threatening, flaming, or spamming other List subscribers in
private communications, but solely at the discretion of the List owner.
Public posting of communications you have received privately are a breach
of netiquette' without prior approval of the author.  Strictly personal
posts among members should be conducted off-list unless the content is of
interest to most members.

Communications posted to the Parkinsn list are not private but are publicly
available on our website and also in the archives. Usage of this
information is intended for research and study. Other uses without
thepermission of the poster are prohibited.

6. List Archives
Parkinsn is configured to archive messages in a searchable database.
Parkinsn archives are maintained primarily as a service to current and
future subscribers. All messages to Parkinsn are automatically archived on
the host computer and include the author's name and e-mail address.
It is not technically possible for subscribers to choose to have their
messages excluded from the archives.

Parkinsn archives are also available at:

http://james.parkinson.org.uk

7. Permissions Granted by Posting to Parkinsn
By virtue of posting a message to Parkinsn, a subscriber grants other
subscribers and the List owner the following permissions:

Permission for the message to be distributed to all List subscribers and
for the message to be read, saved, and stored in electronic, paper or any
other media by other subscribers for their own limited, private use.

Limited, private use may include occasionally sharing copies of a message,
in full or part, with individuals who are not List subscribers, but does
not include re-posting to other mailing lists, newsgroups, Web sites, or
other public forums without the author's explicit permission and provided
that all personal identifying information is removed and the substance of a
message is not altered.

Permission for the List owner or designees to maintain a message in
Parkinsn archives in perpetuity and to edit a message as may be needed to
enhance the usability of Parkinsn archives. Editing may include formatting
changes, removing extraneous text, such as excessive quoting,
and changing subject lines, but does not include altering the substance of
a message nor correcting grammatical, spelling, and similar errors.

*Note that permission of an author is not needed for a List owner or
designee to remove a message from the archives for any reason. The
inclusion of messages in the archives is solely at the discretion of the
List owner.

Permission for the List owner or designees to reproduce a message, in full
or in part, in non-commercial compilations, research, and similar works
that may be in electronic or other media and that may be made available to
the public, provided that all personal identifying information is removed
and the substance of a message is not altered.

8. Privacy
It should be understood that the Parkinson's Information Exchange Network
(PIEN) or ("List") is a public mailing list with several thousand
subscribers. Over time, thousands of people join Parkinsn and have access
to Parkinsn archives and, thereby, have access to the names and e-mail
addresses of anyone who has posted to Parkinsn, as well as any personal
information contained in the messages.

It should be further understood that while subscribers are added to
Parkinsn by a List owner, the List owner does not verify the identity or
representations of people wishing to subscribe. The List owner cannot
shield a subscriber from any misuse of information readily available to any
subscriber nor from the misconduct of any subscriber.

Access to the list of current subscribers is restricted to the List owner.
The list of subscribers will not be provided to any person or entity for
any commercial uses, but may be provided to a person or entity for
non-commercial uses at the discretion of the List owner or as may be
required by law.

Subscribers are expected to keep personal information about others on
Parkinsn strictly confidential. Subscribers should not reveal subscribers'
names, e-mail addresses, or other personal details to anyone not subscribed
to Parkinsn. As in any Internet forum, subscribers should
exercise due caution about including personal identifying information about
themselves or their families in messages to Parkinsn.

9. Commercial Interests
No commercial promotions of products, services, or treatments are
acceptable for posting to Parkinsn. Subscribers may not post any offers of
a commercial nature or use their access to Parkinsn to e-mail suchoffers to
subscribers privately. Subscribers may share their experiences,
good or bad, with particular products, and may also explain how and where
to get such a product, but any recommendations should be based on personal
experience and phrased in their own words.

10. Legal Disclaimers
Information and advice shared on Parkinsn is not a substitute for
professional medical care.

Anyone who has or thinks he or she may have Parkinson's, or any other
health problem should consult a qualified medical practitioner for
diagnosis and treatment.

You use information provided in messages to Parkinsn at your own risk. The
Parkinsn owner shall not be held liable for any harm resulting from the use
of treatments, products, services, or any other information discussed on
Parkinsn.

The views expressed and information exchanged through Parkinsn are solely
the views and information of the subscribers, or the personal views and
information of a List owner posting to Parkinsn. The List owner does not
pre-screen List messages and makes no representations as to the
truthfulness, accuracy, reliability, or safety of information contained  in
messages sent to Parkinsn, compiled in Parkinsn archives, or exchanged
privately among subscribers. Discussion of any treatment, product,
service, or publication is for informational purposes only and should not
be interpreted as an endorsement or recommendation of the List owner.

A subscriber is solely liable for any and all claims arising from copyright
infringement, libel, or any other infringement upon the rights of others
and agrees to indemnify the List owner against any such claims.


Barbara Patterson, Parkinsn List Owner
[log in to unmask]

 ===========================================================================
Barbara Patterson
[log in to unmask]
HSC 2J22                                        905-525-9140, ext. 22403
                        School of Nursing
 ===========================================================================

If you wish to link to this post in a web page or email, use the URL:
http://parkinsn.coles.org.uk/Parkinsons/PARKINSNLog.nsf/ByKey/2641150210F08BFF

janet paterson: an akinetic rigid subtype, albeit perky, parky .
pd: 54/41/37 cd: 54/44/43 tel: 613 256 8340 email: [log in to unmask] .
snail mail: 375 Country Street, Apt 301, Almonte, Ontario, Canada, K0A 1A0 .
a new voice: the nnnewsletter: http://groups.yahoo.com/group/janet313/ .
a new voice: the wwweb site: http://www.geocities.com/janet313/ .

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