>Return-Path: <[log in to unmask]>
>Date: Tue, 4 Sep 2001 10:27:02 -0400
>From: "L-Soft list server at UofT (1.8d)" <[log in to unmask]>
>Subject: You are now subscribed to the PARKINSN list
>To: Janet Paterson <[log in to unmask]>
>
>Tue, 4 Sep 2001 10:27:02
>
>Your subscription to the PARKINSN list (Parkinson's Information Exchange
>Network) has been accepted.
>
>Welcome! You have joined the PARKINSN mailing list, also known as the
>Parkinson's Information Exchange Network (PIEnet).
>
>Please send a message to the list members (if you want to) introducing
>yourself, perhaps telling us how you found us, and any
>Parkinson's-related topics you would like.
>
>The address for posting messages to Parkinsn is:
>[log in to unmask]
>
>Let me introduce myself. I am a secretary for four faculty members in the
>School of Nursing, McMaster University. In September, 1992, I was
>diagnosed as having Parkinson's ... hence my interest in this list.
>
>My purpose in starting the list was the exchange of information about
>Parkinson's. The list rapidly changed into the largest support group I
>know. Besides its original purpose, the list has become 'a means of
>feeling connected' to others... a way of feeling we're not alone... of
>making the road of living with pd easier to bear.
>
>I have always felt that we hear each other better on the list because we
>can't see each other. Symptoms, age, colour, race, don't interfere. The
>list knows no countries, has nothing to do with money... there's no
>"what's in it for me?"
>
>But these same qualities mean our words are open to misinterpretation.
>Since others can't see our wry smile or wink or hear our tone of voice, a
>goal of keeping it "short & sweet" can result in appearing abrupt.
>
>Also, the same word can have different meanings and different shades of
>meaning to different people in different areas of the world so care must
>be taken in both your writing and your reading of the messages.
>
>Flaming and selling are not allowed. Please send messages in plain text
>only. Do not make any changes in medication or any treatments without
>consulting your physician. Be kind. Be honest. Share the time fairly....
>if you think you have taken more than your share of the list resources,
>you just might have.
>
>Keep it generally related to Parkinson's. Don't abuse the generosity of
>the University of Toronto's free gift of the list. Don't include all of
>the message to which you are replying. Use plain text with no
>attachments. Wash your hands with soap before you eat. :) In other words,
>use the same common courtesy that you would elsewhere.
>
>We need everyone's voices if we are going to make a difference in the
>care and treatment of pd and the motivation and funding of research.
>Speak up. Tell your story. Ask your questions. Answer questions.
>Debate/argue about the answers. Debate/argue about the goals,
>administration, day-to-day functioning of the list. Tell a joke... but
>please don't attempt to silence anyone else's voice.
>
>The messages on the Parkinsn list may be personal but they are NOT
>private... never have been. The illusion of privacy when using e-mail is
>just that: an illusion.
>
>Never, in the history of this planet, has this kind of relationship
>existed. We meet in a place that has no walls. We talk to our friends
>whom we have never seen. We care deeply for other members whom we will
>never physically hug. Folks, we're making it up as we go along, so any
>rules have to be flexible. Our Parkinsn Guidelines can be viewed at:
>http://parkinsons-information-exchange-network-online.com/parkinsn.html
>
>If you wish to view Parkinsn messages online you may do so at:
>http://parkinsons-information-exchange-network-online.com/maillist.html
>
>I hope you enjoy your involvement with the Parkinsn Information Exchange
>Network.
>
>Barbara Patterson Owner Parkinsn John Cottingham co-owner Parkinsn
>
>Please save this message for future reference, especially if this is the
>first time you are subscribing to an electronic mailing list. If you ever
>need to leave the list, you will find the necessary instructions below.
>Perhaps more importantly, saving a copy of this message (and of all
>future subscription notices from other mailing lists) in a special mail
>folder will give you instant access to the list of mailing lists that you
>are subscribed to. This may prove very useful the next time you go on
>vacation and need to leave the lists temporarily so as not to fill up
>your mailbox while you are away! You should also save the "welcome
>messages" from the list owners that you will occasionally receive after
>subscribing to a new list.
>
>To send a message to all the people currently subscribed to the list,
>just send mail to [log in to unmask] This is called "sending
>mail to the list," because you send mail to a single address and LISTSERV
>makes copies for all the people who have subscribed. This address
>([log in to unmask]) is also called the "list address." You
>must never try to send any command to that address, as it would be
>distributed to all the people who have subscribed. All commands must be
>sent to the "LISTSERV address," [log in to unmask] It is very
>important to understand the difference between the two, but fortunately
>it is not complicated. The LISTSERV address is like a FAX number that
>connects you to a machine, whereas the list address is like a normal
>voice line connecting you to a person. If you make a mistake and dial the
>FAX number when you wanted to talk to someone on the phone, you will
>quickly realize that you used the wrong number and call again. No harm
>will have been done. If on the other hand you accidentally make your FAX
>call someone's voice line, the person receiving the call will be
>inconvenienced, especially if your FAX then re-dials every 5 minutes. The
>fact that most people will eventually connect the FAX machine to the
>voice line to allow the FAX to go through and make the calls stop does
>not mean that you should continue to send FAXes to the voice number.
>People would just get mad at you. It works pretty much the same way with
>mailing lists, with the difference that you are calling hundreds or
>thousands of people at the same time, and consequently you can expect a
>lot of people to get upset if you consistently send commands to the list
>address.
>
>You may leave the list at any time by sending a "SIGNOFF PARKINSN"
>command to [log in to unmask] You can also tell LISTSERV how
>you want it to confirm the receipt of messages you send to the list. If
>you do not trust the system, send a "SET PARKINSN REPRO" command and
>LISTSERV will send you a copy of your own messages, so that you can see
>that the message was distributed and did not get damaged on the way.
>After a while you may find that this is getting annoying, especially if
>your mail program does not tell you that the message is from you when it
>informs you that new mail has arrived from PARKINSN. If you send a "SET
>PARKINSN ACK NOREPRO" command, LISTSERV will mail you a short
>acknowledgement instead, which will look different in your mailbox
>directory. With most mail programs you will know immediately that this is
>an acknowledgement you can read later. Finally, you can turn off
>acknowledgements completely with "SET PARKINSN NOACK NOREPRO".
>
>Following instructions from the list owner, your subscription options
>have been set to "MIME" rather than the usual LISTSERV defaults. For more
>information about subscription options, send a "QUERY PARKINSN" command
>to [log in to unmask]
>
>Contributions sent to this list are automatically archived. You can get a
>list of the available archive files by sending an "INDEX PARKINSN"
>command to [log in to unmask] You can then order these files
>with a "GET PARKINSN LOGxxxx" command, or using LISTSERV's database
>search facilities. Send an "INFO DATABASE" command for more information
>on the latter.
>
>This list is available in digest form. If you wish to receive the
>digested version of the postings, just issue a SET PARKINSN DIGEST
>command.
>
>More information on LISTSERV commands can be found in the LISTSERV
>reference card, which you can retrieve by sending an "INFO REFCARD"
>command to [log in to unmask]
>
janet paterson: an akinetic rigid subtype, albeit perky, parky .
pd: 54/41/37 cd: 54/44/43 tel: 613 256 8340 email: [log in to unmask] .
smail: 375 Country Street, Apt 301, Almonte, Ontario, Canada, K0A 1A0 .
a new voice: the nnnewsletter: http://groups.yahoo.com/group/janet313/ .
a new voice: the wwweb site: http://www.geocities.com/janet313/ .

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