Hello: I am 84 years old and a PWP for two years. Active and mobile.
Discovered the List while searching for information about acupuncture for a
non-computer friend who is down with cbgd. He is down in spirit and body
and hopes that acupuncture may offer some relief. Problem is to locate a
qualified therapist. Peace, Bob


>From: janet paterson <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: FWD: You are now subscribed to the PARKINSN list
>Date: Tue, 4 Sep 2001 10:43:15 -0400
>
> >Return-Path: <[log in to unmask]>
> >Date: Tue, 4 Sep 2001 10:27:02 -0400
> >From: "L-Soft list server at UofT (1.8d)" <[log in to unmask]>
> >Subject: You are now subscribed to the PARKINSN list
> >To: Janet Paterson <[log in to unmask]>
> >
> >Tue, 4 Sep 2001 10:27:02
> >
> >Your subscription to the PARKINSN list (Parkinson's Information Exchange
> >Network) has been accepted.
> >
> >Welcome! You have joined the PARKINSN mailing list, also known as the
> >Parkinson's Information Exchange Network (PIEnet).
> >
> >Please send a message to the list members (if you want to) introducing
> >yourself, perhaps telling us how you found us, and any
> >Parkinson's-related topics you would like.
> >
> >The address for posting messages to Parkinsn is:
> >[log in to unmask]
> >
> >Let me introduce myself. I am a secretary for four faculty members in the
> >School of Nursing, McMaster University. In September, 1992, I was
> >diagnosed as having Parkinson's ... hence my interest in this list.
> >
> >My purpose in starting the list was the exchange of information about
> >Parkinson's. The list rapidly changed into the largest support group I
> >know. Besides its original purpose, the list has become 'a means of
> >feeling connected' to others... a way of feeling we're not alone... of
> >making the road of living with pd easier to bear.
> >
> >I have always felt that we hear each other better on the list because we
> >can't see each other. Symptoms, age, colour, race, don't interfere. The
> >list knows no countries, has nothing to do with money... there's no
> >"what's in it for me?"
> >
> >But these same qualities mean our words are open to misinterpretation.
> >Since others can't see our wry smile or wink or hear our tone of voice, a
> >goal of keeping it "short & sweet" can result in appearing abrupt.
> >
> >Also, the same word can have different meanings and different shades of
> >meaning to different people in different areas of the world so care must
> >be taken in both your writing and your reading of the messages.
> >
> >Flaming and selling are not allowed. Please send messages in plain text
> >only. Do not make any changes in medication or any treatments without
> >consulting your physician. Be kind. Be honest. Share the time fairly....
> >if you think you have taken more than your share of the list resources,
> >you just might have.
> >
> >Keep it generally related to Parkinson's. Don't abuse the generosity of
> >the University of Toronto's free gift of the list. Don't include all of
> >the message to which you are replying. Use plain text with no
> >attachments. Wash your hands with soap before you eat. :) In other words,
> >use the same common courtesy that you would elsewhere.
> >
> >We need everyone's voices if we are going to make a difference in the
> >care and treatment of pd and the motivation and funding of research.
> >Speak up. Tell your story. Ask your questions. Answer questions.
> >Debate/argue about the answers. Debate/argue about the goals,
> >administration, day-to-day functioning of the list. Tell a joke... but
> >please don't attempt to silence anyone else's voice.
> >
> >The messages on the Parkinsn list may be personal but they are NOT
> >private... never have been. The illusion of privacy when using e-mail is
> >just that: an illusion.
> >
> >Never, in the history of this planet, has this kind of relationship
> >existed. We meet in a place that has no walls. We talk to our friends
> >whom we have never seen. We care deeply for other members whom we will
> >never physically hug. Folks, we're making it up as we go along, so any
> >rules have to be flexible. Our Parkinsn Guidelines can be viewed at:
> >http://parkinsons-information-exchange-network-online.com/parkinsn.html
> >
> >If you wish to view Parkinsn messages online you may do so at:
> >http://parkinsons-information-exchange-network-online.com/maillist.html
> >
> >I hope you enjoy your involvement with the Parkinsn Information Exchange
> >Network.
> >
> >Barbara Patterson Owner Parkinsn John Cottingham co-owner Parkinsn
> >
> >Please save this message for future reference, especially if this is the
> >first time you are subscribing to an electronic mailing list. If you ever
> >need to leave the list, you will find the necessary instructions below.
> >Perhaps more importantly, saving a copy of this message (and of all
> >future subscription notices from other mailing lists) in a special mail
> >folder will give you instant access to the list of mailing lists that you
> >are subscribed to. This may prove very useful the next time you go on
> >vacation and need to leave the lists temporarily so as not to fill up
> >your mailbox while you are away! You should also save the "welcome
> >messages" from the list owners that you will occasionally receive after
> >subscribing to a new list.
> >
> >To send a message to all the people currently subscribed to the list,
> >just send mail to [log in to unmask] This is called "sending
> >mail to the list," because you send mail to a single address and LISTSERV
> >makes copies for all the people who have subscribed. This address
> >([log in to unmask]) is also called the "list address." You
> >must never try to send any command to that address, as it would be
> >distributed to all the people who have subscribed. All commands must be
> >sent to the "LISTSERV address," [log in to unmask] It is very
> >important to understand the difference between the two, but fortunately
> >it is not complicated. The LISTSERV address is like a FAX number that
> >connects you to a machine, whereas the list address is like a normal
> >voice line connecting you to a person. If you make a mistake and dial the
> >FAX number when you wanted to talk to someone on the phone, you will
> >quickly realize that you used the wrong number and call again. No harm
> >will have been done. If on the other hand you accidentally make your FAX
> >call someone's voice line, the person receiving the call will be
> >inconvenienced, especially if your FAX then re-dials every 5 minutes. The
> >fact that most people will eventually connect the FAX machine to the
> >voice line to allow the FAX to go through and make the calls stop does
> >not mean that you should continue to send FAXes to the voice number.
> >People would just get mad at you. It works pretty much the same way with
> >mailing lists, with the difference that you are calling hundreds or
> >thousands of people at the same time, and consequently you can expect a
> >lot of people to get upset if you consistently send commands to the list
> >address.
> >
> >You may leave the list at any time by sending a "SIGNOFF PARKINSN"
> >command to [log in to unmask] You can also tell LISTSERV how
> >you want it to confirm the receipt of messages you send to the list. If
> >you do not trust the system, send a "SET PARKINSN REPRO" command and
> >LISTSERV will send you a copy of your own messages, so that you can see
> >that the message was distributed and did not get damaged on the way.
> >After a while you may find that this is getting annoying, especially if
> >your mail program does not tell you that the message is from you when it
> >informs you that new mail has arrived from PARKINSN. If you send a "SET
> >PARKINSN ACK NOREPRO" command, LISTSERV will mail you a short
> >acknowledgement instead, which will look different in your mailbox
> >directory. With most mail programs you will know immediately that this is
> >an acknowledgement you can read later. Finally, you can turn off
> >acknowledgements completely with "SET PARKINSN NOACK NOREPRO".
> >
> >Following instructions from the list owner, your subscription options
> >have been set to "MIME" rather than the usual LISTSERV defaults. For more
> >information about subscription options, send a "QUERY PARKINSN" command
> >to [log in to unmask]
> >
> >Contributions sent to this list are automatically archived. You can get a
> >list of the available archive files by sending an "INDEX PARKINSN"
> >command to [log in to unmask] You can then order these files
> >with a "GET PARKINSN LOGxxxx" command, or using LISTSERV's database
> >search facilities. Send an "INFO DATABASE" command for more information
> >on the latter.
> >
> >This list is available in digest form. If you wish to receive the
> >digested version of the postings, just issue a SET PARKINSN DIGEST
> >command.
> >
> >More information on LISTSERV commands can be found in the LISTSERV
> >reference card, which you can retrieve by sending an "INFO REFCARD"
> >command to [log in to unmask]
> >
>janet paterson: an akinetic rigid subtype, albeit perky, parky .
>pd: 54/41/37 cd: 54/44/43 tel: 613 256 8340 email: [log in to unmask] .
>smail: 375 Country Street, Apt 301, Almonte, Ontario, Canada, K0A 1A0 .
>a new voice: the nnnewsletter: http://groups.yahoo.com/group/janet313/ .
>a new voice: the wwweb site: http://www.geocities.com/janet313/ .
>
>----------------------------------------------------------------------
>To sign-off Parkinsn send a message to:
>mailto:[log in to unmask]
>In the body of the message put: signoff parkinsn


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To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn