check out www.pallidotomy.com for Parkinson information.

> From: Ronaky Olga <[log in to unmask]>
> Reply-To: "Parkinson's Information Exchange Network"
> <[log in to unmask]>
> Date: Sun, 31 Aug 1980 22:44:50 +0200
> To: [log in to unmask]
> Subject: Hi everybody
>
> My name is Oga Maria, I'm writing you from Hungary, Europe. I'm 49, married,
> have two daughters (26 and 24), one dog and two cats.I joined your list just a
> few days ago. I have had PD for 10 years, but it took the doctors almost 7
> years to diagnose me and in that time wrote me off as a nervous person with
> several rheumatological and unknown problems. Two years ago they put the name
> of my illness,  but it was not at all the name I wanted, I expected something
> better that could be fixed and stopped. For a long time I was very depressed
> (sometimes I still am) but after a while I adjusted to PD and I try to live a
> quite normal  life - if a normal life is possible wirth PD. I mainly have
> symptoms (tremor and rigidity) on my right side and a little on my face, too.
> I have problems with writing, going upstairs and downstairs, doing my work at
> home, and there are days when I even am unable for example to cut a slice of
> bread, I cannot speak for longer time and my voice has changed, many times I
> am not able to eat or drink normally, etc. I often have extraordinary strong
> pain in my neck, shoulders, spinale column and limbs, hardly I can sleep over
> a night, I dream nightmares.  I do also have almost all of the secondary
> symptoms. My illness progressed to that point that I took disability
> retirement in January 2000.
> Here in Hungary we use the same meds as you do, but there are problems with
> informing the patients. All I know about PD is from the USA and Canada, via
> internet. I dare say that on our mother tongue people can get zero information
> on their own illness.
>
> I am on Amantadine 4 times/day, Mirapexin and Rivotril also 4 times/day (only
> under normal conditions, this means that if there is a party at us, or I go to
> theatre or to the Opera, or I must do the shopping,  so if something special
> happens, I have to take more meds)  Zoloft 1/day, Concor 5 (because of the
> frequent extrasystoles in my heart), a special med 3/day for urine problems,
> and four kinds of the California Fitness products (Green Care, Acidophilus,
> multivitamins: New Life, and Citrimax  & Chromium).
>
> Any information and practical advice on life style, what to eat, eating and
> meds and vitamins or others - mainly their relation and effect on my PD and on
> my body functions, would be highly appreciated.
>
> I am going to travel to Austria on Saturday and return on next Saturday. I
> will answer your message after coming home.
>
> Greetings and my best wishes to everybody,
> Thanks
>
> Olga Maria
>
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