Ivan:  I am 84 and have been PWP for two years.  Recently I broke away from
my neuro and persuaded my GP  to work with me for 6 months.  Your message to
Rayilin will be proof that Internet information is not all hype.  You are
living proof that it can be helpful.  I will try to avoid being a nuisance
but I would appreciate your patience in this matter.  The neuro refused to
discuss anything that came thro the computer.  I have one question now.
What determines when you take the Tasmar and when you take it, do you alter
your 3-hour medication /meal routine?  My OFF periods are primarily periods
of extreme fatigue.  I take Sinemet CR 25/100 twice a day at 11:00 AM and
PM.  The neuro said time was not critical except half hour before meal or
two hours after meal.  I am active when I am not fatigued - 5'8" - 140 lbs.
I have no caretaker but my son is here at night.  I eat alone and prepare my
own meals. Sorry that this is so long.  Please bear with me.  Bob Berger


>From: Ivan M Suzman <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: Comtan
>Date: Wed, 5 Sep 2001 10:05:33 -0400
>
>Rayilyn.
>
>Yes, I did receive your e-mails.
>
>I discovered that by combining two types of Sinemet, I do the best.
>
>I start by taking 1/2 of a  "regular" (yellow) Sinemet 25/100 tablet,
>  for  a quick ,  but short-lasting response . My toes UNcurl, and my
>stiffness
>goes away.  By adding a whole  Sinemet CR to the half-tablet of regular
>SInemet,
>I get more "on" time , lengthening my on-periods significantly.
>
>I am careful to have low protein, high fiber meals,  or snacks, timed to
>start 20 to 30
>minutes after medications.  I take meds every 3 hours or so.
>
>I am active, and need high-carbohydrate intake.
>Yet, I am ingood shape, about 5' 10 1/2" , 158 lbs.
>
>Tasmar lengthened the on-periods even more.  I never
>had any trouble with SGOT or SGBT enzymes.  I believe that
>the Tasmar danger is hype, blown way out of proportion by
>competing pharmaceutical companies.    So blood tests
>are not needed except maybe once  a year.
>
>  Sometimes, when I am well rested, andif I time things just right,
>  I have only slight loss of function in my hands during off-periods.
>
>I do have to rest when each off-period starts, however, or I would get
>worn out.
>I am vulnerable to mood swings and exhaustion and feeling low
>during the off-times, so I am careful to try to smile and to rest,
>with low expectations during those times.
>
>
>And this is my 16h year of  having a PWP's life -- not bad, eh??
>
>Beautiful morning .  My Concord grapes are dark violet
>already, and heavy on the vines this  year.  It is
>getting close to harvesting time.  Shoud be an adventure!
>
>Ivan
>
>51, 39, 36
>cyber hugs to you:
>  I<<<Rayilyn>>>S
>
>On Tue, 4 Sep 2001 23:28:58 EDT [log in to unmask] writes:
> > Ivan, I hope you got my email, my computer dumped me.  It does that
> > if I go
> > on too long.  It is not signed.  It is really hard to retype it, so
> > I  hope
> > you got it and it answered some of your questions.   Thanks for your
> > kind
> > concern.  [log in to unmask]
>
>----------------------------------------------------------------------
>To sign-off Parkinsn send a message to:
>mailto:[log in to unmask]
>In the body of the message put: signoff parkinsn


_________________________________________________________________
Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn