Barb -- Now I remember that you were very ill for quite some time. I forgot
it was the changing of the meds, and your own experience with Comtan. I seem
to remember that you also had swallowing difficulties? Did that resolve
because of your adjustment to a new med regime and schedule?
Ann Gibbons


-----Original Message-----
From: Nancy Dreyfus <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Thursday, September 20, 2001 9:40 AM
Subject: Re: Comtan - my story on why & how I dropped it*


>Can you be more specific about deteriorated? Has he developed dyskinesia
and
>other signs of possible levodopa overdose or is the medication not working
>on his PD symptoms?
>
>> ----------
>> From:         Barbara Blake-Krebs
>> Reply To:     Parkinson's Information Exchange Network
>> Sent:         Thursday, September 20, 2001 9:28 AM
>> To:   [log in to unmask]
>> Subject:      Comtan - my story on why & how I dropped it*
>>
>> Ann wrote earlier in Sept.:
>> <<
>> My husband has been on Comtan since the end of Aprril. He hates the taste
>> of
>>
>> it and has a hard time getting it down. (Not so wuth other meds). His
>>
>> condition has deteriorated since he began Comtan and we are just coming
to
>>
>> the realization that it might be this med. Has anyone else had a negative
>>
>> experience with Comtan?
>>
>>
>> Ann Gibbons  cg Joe 67/4
>> >>
>>
>> I n March 2000 I was struck down suddenly and nearly died from kidney
>> failure
>> broought on by RHABDOMYOLYSIS.   At the time  my meds were Sinemet,
>> Mirapex,
>> the COMT  Tasmar, xanax, and Elavil.  In the ICU where I hung out for
>> about 5
>> days, I was given none of them.  Whe my doc asked me which agonist I
>> wanted,
>> I said Parlodel (had never tried it);  which COMT, I said Comtran,  We
>> changed other drugs as well except for the Sinemet.
>>
>> For the rest of the 5-1/2 weeks plus  2 weeks in nursing home, plus more
>> weeks afterward, 9 times out of 10, I ended up spitting  up most of the
>> Comtran.    inally, I went off it, and made other med changes too -- all
w
>> original doc.  In my case it was not easy to drop the COMT  med -- in
fact
>> it
>> was h- - - !  Yo u might want to arrange for s unflappable, soothing home
>> health worker to go on this particular journey, if you take it. (true in
>> many
>> cases I now think when making chabges in meds.)
>> __________________
>> *disclaimer  This story is based solely om ny personal experience and
does
>> not appear in WPSE partly because it happened after mss was finished,
>>
>> Barbara Blake-Krebs 1984/61  [log in to unmask]
>>
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>
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