Ron

I was told to stay off the Internet when I was first dx .(4 yrs. ago) as it
was too depressing and full of whacko's.  I stayed off for three years.  If
I knew then what I know now............and I know this is old news.  When I
decided to run with it and try the things you talk about it helped my state
of mind - which helps everything else.  I have the acceptance I never
thought I would have - and that is my motivation.

I love hearing your wife is 70 yrs. young..  Inspiring.

Bonnie


----- Original Message -----
From: "RON HEIMBACK" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, November 11, 2001 1:56 PM
Subject: Re: had it 23 yrs


> Hello All,
>
> My name is Ron and I have been reading the posts for the past month or
> so and feel compelled to add my 2 cents worth.  I am my wife's caregiver
> and have been for over 20 years.  She was first diagnosed [about age 50]
> when we noticed that she was dragging her foot on our daily walks.
> Fearing a possible stroke, we were "relieved", at that time, to find
> that it was "only" PD.  Our world changed that day, even though we were
> unaware of this at the time.  There are several things that we have
> learned through our experience.
>
> One is to get to know your enemy and look for ways to defeat him.
> Research the web [ go to Google or any other good search engine and
> search parkinsons] and join lists like this one.  Find and join a local
> support group.  Hopefully you have a good Neuro and he or she will allow
> and encourage trying various meds and combinations.  Over the years we
> have tried many combinations and the constant surveillance and adjusting
> of life style and medications can be frustrating.  No two people react
> the same to their medications.  In her case we found that Comtan was a
> Magic pill.  She takes a Comtan, 25/100 sinemet and permax 5 times daily
> about 4 hours apart.  This has worked very well for the past year.
> Recently we find that this is not enough and have to double her dosage
> during bad "offs".  We are currently discussing a possible DBS operation
> in the near future, because the medication is no longer holding as well
> as it has been.   I have to add that she is a very young 70, she often
> passes for age 50 or less and this is her only health problem.   For
> this, we thank God.
>
> I hope that this short bio may help some one else facing these
> problems.  Stay active and don't give in to this thing called PD.
>
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