Well said, Bob. I will always be in the search.
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----- Original Message -----
From: "Schaaf Angus / Meadow Creek Ranch" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, March 06, 2002 9:58 AM
Subject: Re: Annetta Freeman and Alturnatives


> Dear List  Friends,
>
> There are a number of PWP's  "lurking" out in cyberspace who are getting
> relief from alturnative protocalls. Unfortunately, just as with "regular"
PD
> meds. there is no one protocall  that works for all. We have to
> individually tailor our meds and out programs to what works for each of
us.
> So many timesunfortunately, the more vocal members of this list, doctors,
> and drug companies governed  by the almighty dollar and FDA approval tend
to
> "Pooh, Pooh"  what works for some of the other list members. The cure is
not
> here yet so new ideas and thoughts should be welcomed.  How else do we
> learn?
>
> I find it unfortunate that doctors insist on  "canned" routines of
> treatment, because PD is not the same for each of us. The insurance
> companies, etc. probably will never come around due to the big money which
> drives the medical community as a whole. So long as we allow the medical
> community to "practice" on us, this will never change. I don't mean to get
> off on a tanget on the money deal ........ but the so approved path is not
> for everybody. Cheaper can be better!
>
> My point is that we all can benefit from sharing our  knowledge on  this
> subject and benefit others from our experiences. Only by exposing a
reaction
> that we may have had to a  particular drug, can we  help warn others of a
> possible problem.  Similarly when we find something that helps us, a
portion
> of that protocall may benefit someone else ......... God forbid, even if
it
> is not FDA approved.
>
> From my standpoint, I am not so much worried about the cure for PD as I am
> worried about making my quality of life better and allowing me to help and
> be less of a burden to  those close to me. I doesn't bother me that
someone
> I don't even know will notice that I am a PWP. It is not necessary for me
to
> "cover up" all of my symptoms with drugs which cause neurological masking
> and  may cause other problems in later years. If I get relief from
vitamins
> and meds  or what ever  works for me, it should be applauded not ridiculed
> for not following the normal protocol like a blind sheep. My pills cost
only
> $4 a day so the drug companies wont get rich off of me but then again my
> quality of life is better now than it was a year and half ago when I was
on
> sinemet and "the program". I just didnt like the answers or the "help" the
> meds were not giving me.  The quality of life to me is more important with
> PD and if an alturnative treatment is the anwser for me then I am greatful
> for the knowledge and the internet exchanges that provide my solution.
Rob
> ----- Original Message -----
> From: "Arthur Hirsch" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, March 05, 2002 9:02 PM
> Subject: Re: Annetta Freeman
>
>
> > Ervin, it seems as though the Annetta Freeman story has come up every
half
> year
> > since I've joined the list.  You'd do well to look through the archives.
> >
> > Art
>
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