Sally Lattuca
Turn of Phrase
carefully crafted communications
When the words sing. . .the ideas dance!
734.995.1579

----- Original Message -----
From: "Turn of Phrase" <[log in to unmask]>
To: "Parkinson's Information Exchange Network"
<[log in to unmask]>
Sent: Sunday, March 10, 2002 9:29 PM
Subject: Re: Re: FIRST TIME USER


> Linda.
> I, too, read your book as my reintroduction to PD (my Mom had it). I felt
> you did a great job and I learned so much that I realized I should've
known
> when Mom had it. When she was diagnosed in 1990, the only book available
> wasn't nearly so helpful, and I never looked for others in the 10 years
she
> had PD.
>
> The book left me hanging on a couple of things that sounded like they
would
> be of help if I understood them...
>
> >>What is the significance of fava beans? I take it they're good for
> Parkies, but I would like to know why.
>
> >>Apple cider vinegar is good for heading off muscle cramps? Do you drink
it
> or rub it on? If you drink it, does it help to just have some each day
> (rather than waiting for that Charlie horse)? How much do you take (use)?
>
> Thanks for your help!
>
> Sally
>
> Sally Lattuca
> Turn of Phrase
> carefully crafted communications
> When the words sing. . .the ideas dance!
> 734.995.1579
>
> ----- Original Message -----
> From: "Linda J Herman" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Sunday, March 10, 2002 7:52 PM
> Subject: Re: FIRST TIME USER
>
>
> > Hi Scott,
> > Welcome to the list. I hope you will find much information and support
> > here.
> >
> > I am one of the authors of When Parkinson's Strikes Early. I am really
> > distressed to read how much it scared you - that was, of course never
our
> > intent and I'm sorry. Barb and I wanted the book to present an honest
> > picture of people's lives with PD. The media has tended to sugar coat
> > many of its accounts about PD, and our decision to compile the real-life
> > stories of our fellow list members was partly in reaction to that . PD
is
> > not a benign illness. People need to know that. They need to know how
> > important it is that adequate funding and resources are applied towards
> > finding the cure as soon as possible.
> >
> >  Being diagnosed, thinking about the future -- it is terrifying. Talking
> > about it with your spouse, children, friends  is frightening -- and it's
> > difficult -- and it forces us to think about and talk about things we'd
> > rather not.  BUT I hope you also found the message in the book that many
> > others have experienced these same emotions, and that they have found
the
> > strength to face their fears, they have learned to cope, and they have
> > been able to get on with their lives. We can help each other do this.
> >
> > We also tried to convey the importance of  taking an active role in your
> > treatment,  joining with others to fight this disease,  getting involved
> > in political action and advocacy, fund raising, public awareness - these
> > types of positive actions will help you cope.  It sounds like you are
> > already doing so. It's great that you're starting a support group.
> >
> > And the most important message we tried to convey is to live with hope.
> > The cure is coming. In just the six months since the book was published
> > there have been so many advances in the research. You will read about
> > more advances everyday on this list. Each of us still needs to do what
we
> > can to ensure that the most promising research  continues unimpeded and
> > fully funded.
> >
> > Another reader wrote to me that the first time she read our book - her
> > reaction was similar to yours. But she read it through again,
> > highlighting in yellow all the positive and hopeful sections, and by the
> > time she was done there were a whole lot of yellow pages. Maybe at some
> > point you might read it again too. I hope you will find it in some way
to
> > be a source of  help to you and your family
> > Best wishes and good luck with the support group,
> > Linda Herman
> >
> > ----------------------------------------------------------------------
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> > In the body of the message put: signoff parkinsn
>

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