Sherry -

I'm sorry to hear of your experience with Mirapex.  My wife is on it and
doing fine, thank God.  There is no way that you should be on a
therapeutically effective dose after taking it for only two weeks.  It
has to be ramped up VERY slowly.  My wife went in 1/16 mg increments,
increasing every three days so she didn't reach her precent dosage for
72+ days.  Starting Mirapex too quickly is a truly miserable experience,
as you discovered.

Just out of curiousity, what was your dosing schedule, if you remember.

Thanks,
Gary

> -----Original Message-----
> From: Parkinson's Information Exchange Network
> [mailto:[log in to unmask]] On Behalf Of Sherry Santamaria
> Sent: Friday, June 14, 2002 8:48 AM
> To: [log in to unmask]
> Subject: To Dee
>
>
> In a message dated 6/12/2002 6:40:07 PM Eastern Daylight
> Time, [log in to unmask] writes:
>
>
> > I
> > am not sure, at this point, how much of my discomfort is from the
> > medication and how much is from PD but I have not reached the point
> > that I have decided to discontinue the Requip.  The lack of any
> > proven, effective treatment, other than the agonists and/or
> Sinemet,
> > leaves us with little or no choice. I am wondering (after 9
> years with
> > PD) how you are managing to function without medication.
>
> Dear Dee,
> I can only speak for myself of course but after 9 years of
> NOT taking Parkinsons medication I am doing well.  My most
> annoying symptoms are the tremor in my right arm and hand and
> the most painful symptom is the dystonia in my legs.  I do
> take Norflex an anticholergenic muscle relaxer for the
> dystonia, nothing for the tremor.  I recently went to a
> movement disorder specialist because after 9 years I thought
> they could offer me something better than what I was taking.
> To my surprise the doctor told me I was progressing very
> slowly and that what I was doing on my own was fine but she
> suggested taking Mirapex to alleviate the cramping and to
> help the tremor so I tried it.  Well, in just two weeks I was
> nauseous to the point of being unable to eat, dizzy so I
> couldn't drive, arms pinned down to my sides and shuffling
> when I walked.  My mind was foggy and my husband says I was
> getting a masked look on  my face.  NO THANKS!  If that's the
> best they've got I don't want it.  Now I don't claim to have
> a perfect life, like everyone I have good days and bad but I
> feel so much better off the meds than on. And since they only
> help the symptoms and not the disease itself I feel I can do
> pretty well on my own.  Currently I am taking vit C 500 mg,
> glutathione 250 mg 2x's,an iron supplement (I am anemic) and
> bromelain 500 mg daily.  With the glutethione I have noticed
> increased energy and dexterity and the bromelain helps with
> my allergies and cramping.  I have found a product called
> DopaBean by Solaray it's a pill form of mucuna pruriens says
> it has 50 mg of l-dopa.  If anyone wants to look into it
> there is a website, I'll get it and post it.  Well, I have
> gone on haven't I?  Thanks for the chance to talk, take care.
>
> Sherry

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