Good Morning Jeff, Carole, Meg, and All,

I gave this plenty of thought....

A huge effort and infrastructure would be required,
duplicating everything that is already in place....

Oh, I know... there isn't a National Coast to Coast
US combined single entity...

But there are several very successful events...

Which we could support... and make BIGGER...

Check this single event...

The Parkinson Unity Walk (PUW)

The PUW, and other similar organizations, are crucial
to funding research to find a cure for PD. The Walk is
a cooperative venture—so much so that "unity" is the
event’s middle name. Net proceeds from the Unity Walk
support the following major U.S. Parkinson’s foundations:

American Parkinson’s Disease Association (APDA)
National Parkinson Foundation (NPF)
Parkinson’s Action Network
Parkinson’s Disease Foundation (PDF)
The Michael J. Fox Foundation for Parkinson's Research
The Parkinson Alliance
The Parkinson’s Institute

All net contributed funds to the PUW are used by these
organizations to fund and promote research. Expenses
are funded by sponsors, including: corporations (such as
pharmaceutical, financial, real estate, oil companies);
research foundations; philanthropic organizations;
and miscellaneous caring donors.

(foregoing excerpted from...)
http://www.unitywalk.org/whatis.shtml

check these sites and read about what is in place!

Parkinson’s Unity Walk Raises More Than $1 Million
6,000 Participants Generate Record-Setting Figure
Parkinson’s Unity Walk began nine years ago
when 200 friends, family members and fellow Parkinson’s
patients joined Zobel.
http://www.unitywalk.org/press_release1.shtml

Margot Zobel, Founder of the Parkinson's Unity Walk
Speech given April 14, 2002
http://www.unitywalk.org/speech.shtml

Parkinson's Unity Walk 2003
Welcome to Our New Online Participation Page
http://www.unitywalk.org/index2.html

Let's focus on the existing events...

Carole... APDA is running in your state...
The APDA Walk-a-thon is the largest grassroots fundraiser
in the world dedicated to Parkinson's disease research.
Expenses are kept at a minimum, so 100% of the money
sent to the national office is used for research.
The Walk-a-thon is also the only fundraiser where the
entire net proceeds are sent to the national office.
Many individuals who do not regularly donate to APDA
take this opportunity to directly fund research into the
cause and cure for Parkinson's disease.
http://www.apdaparkinson.com/howwalk.htm

walkin' in Manchester, CT Oct. 6th.
and in Cockaponset State Forest, CT Oct. 20th.
http://www.apdaparkinson.com/howwalk.htm

8th Annual Cockaponset Trail Race
http://www.chesterct.com/cockaponset.html

and... if you live in New Mexico...
Join and Support Tom Berdine
The  Young Onset Parkinson's Association
and The American Parkinson's Disease Association
present 1st Annual Southwest Regional Parkinson's Disease Conference
and 1st Annual Young Onset Parkinson's Disease Awareness Walk
October 11-12 2002 Albuquerque, NM
http://www.youngparkinsons.com/symposium.htm

and if you're really ambitious...
Founded by Mary Yost three years ago, Team Parkinson
set a new record by raising over $90,000 at the 2002
LA Marathon!

Team Parkinson 2003
http://www.teamparkinsonla.org/home.htm

Sooo... Let's make Parkinson's Unity Walk in NYC
go to $2,000,000 in 2002... Margot & Ken won't mind!

and Team Parkinson to $180,000... Mary 'n John 'n Edna
wouldn't object to that...
(or to the Boston Marathon as well?)

and find out more about APDA Walk-A-Thon
and support doubling their goals...

Didja know APDA Walk-A-Thon have a 15 year history
in Rhode Island?  and maybe more elsewhere...

This is where we can help instantly...

Let's promote awareness of the existing events
that are only there through YEARS of dedication
and hard work...

So, let's NOT reinvent the "wheel"...

Can we have a coast to coast national US walk?
Maybe... there is a merger of PDF and NPF that
is taking place over the months ahead...

And I know PDF and Parkinson's Alliance have a
very sound working relationship...

Let's first find out (as Meg Duggan has) if there
is an existing walk in our area... and then act accordingly...

Let's attend our own area walk, let's volunteer, etc.

YES, this CAN BE DONE!

cheers ... murray


On 28 Sep 2002 at 11:12, Jeff Bayard wrote:

> Yes, and what can we name it? Whats a good name for this walk, which could
> coincide with Canada's schedule.
> The North American Walk for Parkinsons? N.A.W.K......Walk the Nawk!
> If you cant talk the talk, walk the Nawk!
> Give me some ideas, folks! This CAN BE DONE!
>
> Jeff Bayard
> Help Find the Cure!
> http://dialforacure.com
>
>
> ----- Original Message -----
> From: "Carole Hercun" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Saturday, September 28, 2002 8:05 AM
> Subject: Re: Superwalks / Point Me in the Right Direction
>
>
> > Good Morning, Murr-
> > You Canadians appear to be ahead of us in this regard. I
> > have participated in the Unity Walk in NYC, and that is
> > awesome, so I imagine a nation-wide Superwalk would
> > be...well, spectacular. I haven't been much of an activist,
> > sitting quietly in my little corner of Connecticut, BUT
> > since I am currently jobLESS, indirectly due to my PD and
> > have more time than money, and little to do but work on my
> > unsold manuscripts, maybe this is the time to start. I feel
> > like that Peter Finch character in that movie where he's
> > screaming out the window that he's not going to take it
> > anymore. I haven't a clue how to begin, so if someone with
> > more politcal savvy can point me the right direction...
> > Carole Hercun
> > P.S. And let's be positive, folks. I don't need a
> > godzillion replies saying I don't know what I'm talking
> > about. I DON'T know what I'm talking about, so help me out.
> >
> > --- Murray Charters <[log in to unmask]> wrote:
> > > Good Morning Carole, Meg, SuperWalkers, and All...
> > >
> > > SuperWalk for Parkinson's raised nearly a million bucks
> > > in Canada last year and will easily surpass that this
> > > year...
> > >
> > > To put this into perspective... There are approx. 100,000
> > > Canadians with Parkinson's so that is about $10 for each
> > > Parkie raised by the people with Parkinson's in a single
> > > coast to coast event...
> > >
> > > In the US there are more than 1,000,000 Parkies so a
> > > similar national walk could raise $10,000,000.00!
> > >
> > > And... this essentially would constitute "new money", not
> > > trying to get a bigger piece of the existing pie at the
> > > "expense" of some other disorder...
> > >
> > > here are the links...
> > >
> > > SuperWalk for Parkinson's
> > > http://www.superwalk.com/main.html
> > >
> > > Walking towards a cure... pledging to make a difference.
> > >
> > > SuperWalk for Parkinson's is PSC's single-most important
> > > national awareness and fundraising event. Through
> > > individual
> > > and corporate pledges, the 2001 walk was the most
> > > successful ever, raising over $925,000. The 2002 event
> > > will take place this coming September in 60 sites across
> > > Canada...
> > >
> > http://www.eldertreks.com/newsletters/may2002/maypark.html
> > >
> > > Go out and walk, meet your family and friends on a sunny
> > > Saturday morning in the park, raise funds...
> > >
> > > SuperWalk is Win Win...
> > >
> > > SuperWalk started in Ontario about 1991 and gradually
> > > grew...
> > >
> > > I've walked in Stanley Park in Vancouver every year since
> > > 1995,
> > > I think...
> > >
> > > I know of some walks in the US already... (Unity Walk in
> > > NYC,
> > > walk on the Mall in Washington DC,) but I think there is
> > > plenty of
> > > room for a national US SuperWalk...
> > >
> > > It's really up to you Meg, and you Carole, and you and
> > > you
> > > and you... the people...
> > >
> > > The ball is rolling... I will come down and walk... let's
> > > get this
> > > done...
> > >
> > > Some stories...
> > >
> > > SuperWalk on Sept. 28 battles Parkinson's
> > >
> > http://www.simcoe.com/sc/barrie/story/584738p-717111c.html
> > >
> > > Lloyd Stamp walks the walk in fight for Parkinson's cure
> > > http://www.therecord.com/news/news_02090485734.html
> > >
> > > Superwalk on Saturday helps raise funds for research
> > > into Parkinson's disease...
> > > http://www.guelphmercury.com/news/news_02092683120.html
> > >
> > > Superwalk for Parkinson's battles crippling disease
> > >
> > http://www.mississauganews.com/mi/news/story/606879p-742011c.html
> > >
> > > * * *
> > >
> > > AND... in NYC...
> > > The 2002 Parkinson's Unity Walk Raises More than
> > > $1,000,000!
> > > http://www.unitywalk.org/
> > >
> > > cheers ....... murray
> > >
> > > On 27 Sep 2002 at 7:51, Carole Hercun wrote:
> > >
> > > > Meg,
> > > > I think a nation-wide superwalk would be great.
> > > Anything we
> > > > can do to help implement it? I also like this notion of
> > > > whapping people on the side of the head ;)) Carole
> > > >
> > > > --- Meg Duggan <[log in to unmask]> wrote:
> > > > > Thanks everyone for information about Superwalks.  I
> > > live
> > > > > in Kansas City.  We
> > > > > do LOTS of events here and I think, have made a real
> > > > > difference in awareness
> > > > > etc...  I am interested in bringing the notion of
> > > > > superwalks to the National
> > > > > Parkinson Foundation who is interested in doing some
> > > kind
> > > > > of national event.
> > > > > I think ALL of us should do something together and
> > > really
> > > > > whap people on the
> > > > > head. Meg
> > > > >
> > >
> > > * * *
> > >
> > >
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